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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Fibromyalgia?

By A MyFibroTeam Member 78 answers

Sharing The Importance Of Staying Clear Of "Ultra Processed Foods"!

By A MyFibroTeam Member 44 answers

What Are Your Top Tips For Dealing With Fibromyalgia In The Heat?

By A MyFibroTeam Member 119 answers

Which Fibromyalgia Symptom Surprised You The Most?

By A MyFibroTeam Member 261 answers
22694 questions

For Anyone Who Doesn't Work Due To Disability How Do You Pick Yourself Up On Bad Days? I Feel Like I Just Exist At This Point ☹️

A MyFibroTeam Member asked a question 💭
Derbyshire
A MyFibroTeam Member

It's sucks, that's really what it takes for fibro too and if you don't it will get SO much worse 😢

October 18

Have Any Of You Experienced Depersonalization ? It’s Terrifying …

A MyFibroTeam Member asked a question 💭
West Coast, US
A MyFibroTeam Member

Yes and I think psychedelic therapy, specifically psilocybin, helped a lot, even after years of no psychedelic use
When it happens now, I've been able to reframe it to be more like sudden onset deep… read more

October 18

Heading For My First Rheumatology Appointment (with A Real Doctor, Lol) Tomorrow. Any Suggestions For Questions To Ask?

A MyFibroTeam Member asked a question 💭
Taft, CA
A MyFibroTeam Member

Hello fibromyalgia Fkn sucks. Where did your friend get her lyme disease test please?

October 16

Does Anyone Else Go Crazy When Digital Alarms, Phones, Dryers, Etc., Go Off?

A MyFibroTeam Member asked a question 💭
Easton, PA

My Freestyle Libre goes off when my blood sugar gets too high or low. It has an alarm sound but it doesn't stop. It takes time for my sugar to get back up and the #@#$ thing doesn't stop. The same if my sugar is high and I need to take insulin. Insulin needs time to work but the damn alarm keeps going off. Today, the alarm kept going on, while my phone was ringing, and the dryer alarm was going off. I almost had a complete meltdown. I don't know why this is bothering me so much but I am so tired… read more

A MyFibroTeam Member

Actually, i was engaged to someone else. Michael kept asking me out but i didnt go. Then, a bartender who was a good friend tokd me the truth about my fiance who was married and had 2 young daughters… read more

October 21

Question For Those On Universal Credit In The UK

A MyFibroTeam Member asked a question 💭

New here, l'm a 45 year old male from the UK. I've been diagnosed with Fibro for almost 2 years now but suffering for almost 8 years now
My question is for UK people, l've been on ESA for 7 years and recieving PIP for 2 but l've been told I need to move over to Universal Credit and I need to attend the Job Centre to meet a work coach
Day to day I never know how I'm going to be, but every night I barely sleep and during the day my exhaustion causes me to go back to bed, all the while l'm having… read more

A MyFibroTeam Member

Hi Marshie 888
I have had this terrible disease for around 14 years now. I had no choice but to
leave my job and reluctantly sign onto universal credit, this was about three years ago now. Like you… read more

5 days ago

Has Anyone Got Gel Injections For Knee Pain And If So Did They Help?

A MyFibroTeam Member asked a question 💭
Timmonsville, SC
A MyFibroTeam Member

Thanks for your reply.

October 16

Am I The Only One That Feels I Can Deal With The Pain, It's The Fatigue That Overwhelms Me.

A MyFibroTeam Member asked a question 💭
Bullhead City, AZ
A MyFibroTeam Member

I would say the pain is worse because the fatigue u can take a nap or sleep for a couple hours and feel at least a little refreshed but the pain never stops and if your in a city where doctors refuse… read more

October 16

Hello All, Do Anyone Have Inner Ear Pain Coming From Your Neck? My Pain Management Dr Said It Was Trigeminal Neuralgia. Fibromyalgia Symptom

A MyFibroTeam Member asked a question 💭
Philadelphia, PA
A MyFibroTeam Member

The pain is the worst.i feel it in my neck, left side and on the left side of my head. If I drink water moving my head back it hurts bad. If I sneeze or cough it hurts. I tried the heating pad, but no… read more

October 13

Is The Cause Of Fibromialgia Known?

A MyFibroTeam Member asked a question 💭
Highbridge
A MyFibroTeam Member

https://www.kcl.ac.uk/news/new-study-shows-fibr.... I whole heartedly believe in this and it has yet to be disproven.

October 12

Has Anyone Ever Had Had A Flare That Affected Your Jaw Or Teeth?

A MyFibroTeam Member asked a question 💭
Fairbanks, AK

I recently had a really bad flare up and I started having a toothache. I thought it might be the start of an abscess at first but it never got any worse. It was a dull achy feeling. Later it moved to a different tooth on that side and then moved to a few different places and then eventually went away. Now it has been a few days and my teeth are all fine. That is a first for me.

A MyFibroTeam Member

@A MyFibroTeam Member That is scary. I hope the doctor is right and it isn't anything to worry about.

October 13
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