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Do You Ever Feel Like You Aren't Being Heard?

A MyFibroTeam Member asked a question šŸ’­
Mishawaka, IN

I am really starting to get discouraged. When people as me how I am doing, most of the time I get supportive responses when I say how I am doing. However, there is one friend who, when I answer honestly, says something to the effect of "Oh, so and so has it worse than you, why are you complaining? Why aren't you doing more, so and so goes to the gym every week and exercises at home."

How do you reply when someone responds to you in that manner. I have tried lying and saying "I'm ok." But Iā€¦ read more

February 9, 2017
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A MyFibroTeam Member

Those are the people I limit my time with...I have too much going on to listen to that all the time. A truly supportive friend will listen and have some compassion. Mine don't do that, however, I do have a couple that ask...and as I am answering they aren't really listening. Makes me feel like all I do is complain, which is far from it, if everyone knew what I don't say. I agree with @A MyFibroTeam Member that she may care about you because she is mentioning exercise...I agree with that, but also know that I get sick of hearing that. I exercise within my limits for the day...sometimes that isn't good enough for friends, family, doctors, etc. I just blow it off, because only I know how far I can push it without causing myself to be a complete mess for days on end. Do what you can...but do...if that makes sense. As for saying I'm fine is lying...I don't think so. I think we know who is truly supportive and we choose to share those details with those that are safe (emotionally) to do so...where we don't set ourselves up for feeling defeated, unheard, misunderstood, etc. etc. etc. We don't need that on top of the rest. Figure out your safe people...the remainder are your friends...just serve a different function right now. If you are feeling like you need to be encourage to exercise or to be motivated to get out a little...turn to this friend. They say that all friends are there for a reason, a season or lifetime...you may not know which one (they may not know), but this is the epitome of that. Chin up! (((Hugs)))

February 9, 2017
A MyFibroTeam Member

I used to get that from my mom and my sister-in-law until they were diagnosed with fibro too. Then it became poor pitiful me and it was all about them. I even heard, well you must have been misdiagnosed because you never have flare ups from it. Most people ignore the problem or say something like, oh, I've heard of that. Isn't it what the drs. diagnose when they get tired of trying to figure you out? Over the years I have learned to just keep my mouth shut except when talking to my dog, she always loves me no matter if I am loving her, or just letting her curl up beside me in bed.

February 11, 2017
A MyFibroTeam Member

No one can come close to fathom the crippling pain this fibro causes if they don't experience it themselves. & Even then, each person is different. Some have an extreme tolerance for pain, when others get relief from certain medications.

February 11, 2017
A MyFibroTeam Member

Thank you everyone. I don't feel so alone anymore.

February 15, 2017
A MyFibroTeam Member

My boyfriend always says "and you think I don't hurt" this from the person I'm sharing my life with 8 years I been with him. My kids say why don't you get up and move around. My children who are grown adults that I should be able to count on when I need help and the rest of my family say you know your a drug addict because I go to pain management. Don't feel bad they just don't understand what we go through. I know the most important one loves me and cares and that's my God in heaven, if it wasn't for him I would not make it through one day. He's the only reason I'm still alive. Praise God!

February 10, 2017

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