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Need Help Getting Through To My Partner

A MyFibroTeam Member asked a question 💭
Manchester, UK

Hi all I'm trying to get my partner to understand fibromyalgia and how it impacts on our lives would you please answer a few questions for me so I can hopefully get him to read them and maybe be able to understand more.
How has fibromyalgia impacted your day to day living
How has it impacted on your relationship with your partner
Has it changed you as a person
Thanks in advance for your response xx

September 5, 2017
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A MyFibroTeam Member

I was diagnosed with fibro in 2011, and it was such a relief that someone finally believed me...yes, it has made many daily activities hard or even impossible. I used to walk a lot, now it hurts me to do the simple stuff- laundry, cooking, sweeping,ect. We are getting a smaller house because often I can't manage stairs very well. It has changed how we shop...lots of small trips because I can't handle trips that last for hours any more.
My hubby is my rock, and it hurts me that he worries about me so much. He is great, but our relationship definitely changed. We both read a ton, so education helps.
I am stubborn. I have always been the underdog, and this is no different. I have leaned that if I can do things differently, I can still find ways to accomplish my goals. So days I can only stay in bed, but sometimes i can do more. I just refuse to give up. I hope you feel the same.
Gentle hugs...

September 5, 2017
A MyFibroTeam Member

Fibromyalgia changes everything but it's not your fault. None of us asked for this non-stop pain. Your not miserable and boring ... your coping.

September 6, 2017
A MyFibroTeam Member

I just got diagnosed last month and I am still learning what my limits are. My husband understands but at times I don't think he does. When going somewhere he would always park close to the building or drop me off but now he don't do that. I think he is still learning what my limits are and that there is never a day like another. Every day is a different day. You may have a good day and tomorrow could be your worse. I think communication and education is the best key for a relationship or marriage. Learn together about fibromyalgia.

September 7, 2017
A MyFibroTeam Member

Fibromyalgia.. has completely changed my life.. any loved needs be compassionate and understanding. I have had to stop working. I have been on disabilty. It can affect every part and system in your body it's not just muscular pain.. there is so much information about it on the web. The symptoms list goes on and on. it is not in your head. Your Husband needs to be loving , patient,and helpful. You have days where you feel just fine and can do whatever you need to do... And others when you can not get out of bed. Fibromyalgia is chronic condition and it is not curable it is only treatable. You will need to change your diet if your not eating right. The Best thing to do is find a very good doctor who really understands fibromyalgia.. it can also depression and anxiety so you will need a good psyche doctor as well. Good Luck to you!! Tell your partner to learn and understand because it's so hard for people who do not have this to understand your pain and how you feel.

September 6, 2017
A MyFibroTeam Member

I wish my hub would understand. He just gets frustrated with me all the time when
I'm sick and have a lot of pain. I can't get through to him. I've given up trying. My husband has asperges and lacks empathy. Makes it hard for me and the children.

September 6, 2017

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