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What Is One Thing, Or A Few Things, That You Miss The Most That Fibro Took From You? Mine Are Listed Below.

A MyFibroTeam Member asked a question πŸ’­
Columbus, OH

1. Exercising (running - 3 mile run, P90X, TaeBo, Insanity). Yes, I used to do all of those things. Fibro gets worse every year and I can barely walk, let alone run.
2. Wearing my sexy heels. I can barely wear flats now with my feet hurting so much. (I still try)
3. Enthusiasm to do... anything. I have no desire anymore 😞 (I force myself though)

August 31 (edited)
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A MyFibroTeam Member

So many things. Gardening was something I liked doing. I've had fibro for over 30 years. I've learned how to cope and adjust. (Most of the time)
My legs and feet hurt too which makes it hard to do much.
Just go slow and enjoy good days. Try not to get down in the dumps. It makes everything worse.
I find listening to uplifting music and coloring calms me. I usually can't color for long but still enjoy short periods of time.

August 31
A MyFibroTeam Member

Definitely the enthusiasm to do anything. I force myself too. The fatigue is awful 😒

August 31
A MyFibroTeam Member

JodiHolleran, I can totally relate to ALL of this! It is VERY mentally draining and depressing. I feel very lost most days and I struggle to not allow depression to take over. Another thing I miss is any resemblance of focus! Uugh... this "Fibro Fog" is so intense with me that I'm concerned about my job. I can't focus on anything and rarely get much done throughout my days at work and at home. It's a constant battle of self-talk telling myself "Alisha, get it together! Focus!" 😞

August 31 (edited)
A MyFibroTeam Member

Energy and having a good brain. I used to be a gym rat and very smart, mentally quick. The fatigue and brain fog have changed that and that makes me sad when I think about it too much. Hugs.

August 31
A MyFibroTeam Member

Running. I miss that running high. It was the only meditative thing I could ever do. I would just turn off my mind and concentrate on breathing and rhythm of movement. Now I am afraid of any type of exercise and yet I know I need to do more of it. This leads to more anxiety.

Not having to think about resting the day before I go out to do something fun as well as pacing everything I do.....chores, errands...everything. it is mentally exhausting and can lead to anxiety attacks. Also getting angry at myself for overdoing it and being in a flare the next day. Leads to feelings of depression if I do that. Keep having to remind myself it is not my fault. I didn't ask for this.

Not feeling capable and in control.
Now I am always feeling like I am running behind on....well....everything in my life. Also, my own judgement of myself for not being able to do all the things a normally functioning person would be able to do. I keep having to remind myself I have a chronic illness for God's sakes! I think because those around me can't "see" my abnormally functioning nervous system. I wish there was some PET scan they could do to show the dysfunction. Then I could say see "This isn't working like it should." Leads to depression if I get caught up in that.

Having confidence in the medical profession and medical system. That's gone. I feel abandoned by the system that is suppose to help me.

August 31

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