I’m not sure about myself Eleanor, I’m sure you’re not crazy you’re a teacher. Seriously what you wrote is true. I was originally diagnosed with chronic fatigue. I was exhausted fell asleep at work, with mainly leg pain and flu like symptoms. This crosses into fibro. Then I got body wide pain and so many other symptoms kept occurring so I thought it was more like fibro. Now thinking more like chronic fatigue again. A pain consultant wanted to argue last year as to whether I had fibro or not. I told him I don’t care about my diagnosis just help me. Which he couldn’t . Take care.

Yes, I definitely wonder if it’s all in my head sometimes with all the other crazy I’ve got going on up there 🤪 but like Peter, I was stuck in bed a few years ago. I can’t imagine being stuck in bed now but the fact remains that it happened, because of this ridiculous disease. I was diagnosed after nine years and a million medical tests showed nothing else that could account for my pain, fatigue, brain fog, etc. Like you, pain is not the major symptom for me, but rather fatigue. Sometimes this leads me to think that maybe Im just lazy. But then I try to lead a normal life and it quickly becomes apparent that I can’t. If I try to go back to my old life with less rest and more activity, it becomes dangerous for me to drive or even walk around the house without holding on to the walls and furniture. All this is to say that I’m not crazy and neither are you or Peter or anyone else here. Our issues are valid and real. Just because the world or various people might view the diagnosis with suspicion doesn’t mean it’s worthy of that. Hugs 🩷💚

It's not in your head
The pain is real.
I started out with depression. It took many tries with medications to find the right medications. Then a year later the pain started. It was hard getting out of bed and the fatigue was bad too! It took years til a doctor put me on two antidepressants til I started feeling better. I still have pain mostly in my neck, shoulders and upper arms. Now I have fibromyalgia and osteoarthritis. I still have to pace myself throughout the day.
I'll pray you get some relief from the pain. Huggs!

On a good day I feel like this. I spent eight years more or less in bed. For about three years although ill I have been well enough to push myself to do diy and gardening again. This left me feeling I could probably have done more rather than stay in bed. The last three months my pain has got worse, IBS returned prostrate playing up, OA flaring. Now I remember how ill I was Sima. You’re not crazy Sima you’re ill. The response of professionals and people can make you question your sanity don’t let it Sima. Let this group be your sounding board. You’re as sane as me. No that’s not a good place to be, your sane. Take care.

Thank you soo much this means a lot I’m soo sorry you’ve gone through soo much I think for me it’s the mental side that’s effecting me the most is it weird I’d rather have pain so I don’t feel like I’m crazy 😔 I hope you are having a better day today I’m grateful for this group it really helps to feel not alone x