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Anyone Wondered If This Is Ms Not Fibro

A MyFibroTeam Member asked a question 💭
Rugby Warwickshire
December 4, 2024
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Answer Summary

Members opened up about whether their symptoms might indicate multiple sclerosis rather than fibromyalgia, with several sharing their... Read more

Members opened up about whether their symptoms might indicate multiple sclerosis rather than fibromyalgia, with several sharing their experiences of extensive MS testing that either ruled it out or left questions unanswered, including one member whose neurologist said two brain lesions weren't enough for an MS diagnosis despite rapidly declining mobility. Many described overlapping symptoms like chest tightness (often called the MS hug), vertigo, numbness, and muscle weakness, with practical advice emerging to track symptoms carefully, discuss specific concerns with doctors rather than self-diagnosing, and pursue further testing when mobility or function significantly changes. A heartfelt theme was the importance of taking breaks from symptom research and medical worry, with one member offering a pact to step away from googling and instead focus on enjoying time with family during the holidays, reminding everyone that constant stress can worsen symptoms and that living fully in the present matters just as much as seeking answers.

A MyFibroTeam Member

I think people are right to say stop worrying or get it checked out. I do either of those. If it’s something minor like losing feeling in my fingers I put it down to fibro and don’t worry about it. If it’s something like me starting to fall while I’m standing up I ring the doctors and get it checked out

December 7, 2024
A MyFibroTeam Member

MS has official tests.

December 4, 2024
A MyFibroTeam Member

But it can also go undetected on MRI’s for years. 🫠

What’s got you asking, Lucy?

If it’s the tightness in your chest, ask your doctor about it! Tell them your concerns too. Let them help ease your anxieties. 🤗💜

There can be a lot of causes, and as you know more commonly for fibro sufferers it can be costochondritis. But the symptoms are very similar.

Make some notes for your doctor, maybe try tracking it for a month or so. Does it start the same way, on the same side every time? If not, how is it different? Is it cyclical, do you notice it the same time of day or month? Anything happen before hand, like a trigger you can identify? All the notes 🙃

Did you ever have your follow up with the OBGYN for your adhesions?

December 4, 2024 (edited)
A MyFibroTeam Member

Great advice Fiona. Take care.

December 8, 2024
A MyFibroTeam Member

Yes, I thought that I had to have MS also for sure but they just did a brain MRI and it wasn't. I'm surprised that they found anything in there, lol!!

December 7, 2024

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