Connect with others who understand.

Sign up Log in
Resources
About MyFibroTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Fibromyalgia?

By A MyFibroTeam Member 81 answers

I Don't Understand When Ppl Say They're Having A Flare. Are Yall Not In Constant Pain Like I Am? I'm In Pain All The Time!

By A MyFibroTeam Member 57 answers

Who Wears Their Pajamas When You Are At Home?

By A MyFibroTeam Member 34 answers

Pet Pictures!!! Needed Asap!!! Do Not Make Batgirl Flare Up Again. Pets Are The Medicine Needed. 😉

By A MyFibroTeam Member 163 answers
22787 questions

Has Anyone Experienced Freezing Cold Arms From Fibromyalgia Mine Feel Like Ice

A MyFibroTeam Member asked a question 💭
Sharon, MA
A MyFibroTeam Member

Yes!! I my arms are aways COLD in the winter !! Always HOT in the summer in very hot AZ.

Old Sue

November 5

That Was Weird I Thought I Couldn't Open My Eyes Then Blimey

A MyFibroTeam Member asked a question 💭
Rugby Warwickshire
A MyFibroTeam Member

Maybe a Natural teat drops will help You buy it at the Chemist

November 2

I Wanted To Tell You All About Creaky Joints Subscription.

A MyFibroTeam Member asked a question 💭
New Orleans, LA

Today's message from them they spoke about the importance of dressing down for a doctor's appointment. Particularly if you have an invisible disease. If you go there with your hair styled and makeup and dress they are not going to take you seriously about your pain and not feeling well. They say you must dress down to look like you're not feeling well .they even suggested darkening the eyes with eyeshadow that is gray. I think this is really something because I know I used to dress up a little… read more

A MyFibroTeam Member

I have learned this because if I posted a picture with make up on. People would always say oh you are feeling better, and I would say no I am just trying not to die. So yes unfortunately it is true… read more

November 7

I’m In The US. I Take Low Dose Opioids For Pain. Does Anyone Else Feel They Are Portrayed As A Drug Addict?

A MyFibroTeam Member asked a question 💭
Plano, TX

I have had the same pain management doc for several years. Have taken very expensive injections without seeing much success. I am allergic to Celebrex and torodol. ( anaphylaxis) Two of my prescriptions were not originally listed as “controlled substances”. Then they changed the status. Now I have an established protocol that works for me but I get letters from my insurance and warning from the pharmacy that these are subject to addiction and suggesting I take things like Celebrex that cause me… read more

A MyFibroTeam Member

Happy to add you! I have prescriptions for tramodol, low dose hydrocodone and Lyrica. Until recently only the hydrocodone was considered controlled. I don’t take them all at once or every day but I’m… read more

October 31

How Covid Vaccines Affects Fibromyalgia’s?

A MyFibroTeam Member asked a question 💭
Pinon Hills, CA

Now, my specialist thinks that the vaccine has exacerbated symptoms 10 fold of my fibromyalgia. I was in agony. My recovery was a lonely, slow process. Then the holy spirit came unto my soul. Give God a chance and witness the miracles. My soul is at peace and spirit renews everyday with lots of love, compassion and understanding in my ♥️.

I haven’t recovered yet. Still struggling with flare ups due other underlying conditions but have through constant meditation kept under control the panic… read more

A MyFibroTeam Member

All of my vaccinations do that to me. Some of them worse than others. The Covid vaccine, I have fatigue for about six weeks or so and my fibromyalgia is worse during that time. I hate it and I have to… read more

October 30

Does Anyone On This Site Know Of Organizations That Advocate For Research And Public Awareness Of Fibromyalgia?

A MyFibroTeam Member asked a question 💭
Batavia, IL

I would like to get more involved in an activist way, but don't know how to go about doing that.

A MyFibroTeam Member

I am a member of the National Fibromyalgia Awareness Foundation. They are a wonderful suport

October 29

Does Anyone Have Trouble Walking Up Steps?

A MyFibroTeam Member asked a question 💭
Carlisle, PA
A MyFibroTeam Member

Yes

November 7

Has Anyone Used This Device For Pain Or Anxiety? Https://ca.choosemuse.com/products/muse-2

A MyFibroTeam Member asked a question 💭
Vancouver, BC
Muse 2 | Muse™ EEG-Powered Meditation & Sleep Headband
Muse 2 | Muse™ EEG-Powered Meditation & Sleep Headband
A MyFibroTeam Member

I would love to try that but it’s expensive. Maybe the price will come down in a few years

October 28

Muscles At Top Inner Thigh Near Groin Hurting A Lot. Think It’s From Standing A Lot This Week With So Many Appointments. Anyone Get This?

A MyFibroTeam Member asked a question 💭
Capitola by the Sea, California
A MyFibroTeam Member

All of my muscles ache, some all of the time some at different times of the day, depending on what I have been doing on the day.

November 6

Hi. I Receive Emails From Websites On A Regular Basis With Updates On Research That Is Happening.

A MyFibroTeam Member asked a question 💭
Nottingham, UK

Is anyone else on any websites?
Here is a link to some research I have just read.
https://www.healthrising.org/blog/2024/08/31/fi...
I hope you find it helpful 🫂

The Central Nervous System Sensory Disorders: Dr. Clauw on Fibromyalgia, ME/CFS and Long COVID - Health Rising
The Central Nervous System Sensory Disorders: Dr. Clauw on Fibromyalgia, ME/CFS and Long COVID - Health Rising
A MyFibroTeam Member

I don’t subscribe to any websites on chronic illness. Periodically, I will look for something specific and I try to stay current with new studies.

https://www.liverpool.ac.uk/research/research-t....

October 26
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in