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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Does Anyone Else Feel Bad Wanting To Avoid Constant Negativity Because It's Draining!

By A MyFibroTeam Member 58 answers

Who Wears Their Pajamas When You Are At Home?

By A MyFibroTeam Member 34 answers

Are You Frustrated With Finding Effective Treatments For Fibromyalgia?

By A MyFibroTeam Member 125 answers

What The Eff Is... Bozenberry?

By A MyFibroTeam Member 31 answers
22787 questions

Hi My GP (uk) Doctor Says Fibro Isn't A Progressive Illness But I Seem To Be Getting Worse Every Is My Doctor Right

A MyFibroTeam Member asked a question 💭
England uk
A MyFibroTeam Member

I have several other conditions so I’m not sure if my dobro pain is progressive or not. I have psoriatic arthritis and recurrent Epstein Barr virus. After an EB flair it can take months for the… read more

October 27

Does Anyone Get An Achey Sore Feeling On The Side Of The Hip In The Fatty Area That You Think Is Fibro Related?

A MyFibroTeam Member asked a question 💭
Culpeper, VA
A MyFibroTeam Member

Corgis twerking always make me giggle lol

2 days ago

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A MyFibroTeam Member asked a question 💭
San Francisco, CA
A MyFibroTeam Member

I will have small portions of treats. I find that if I eat too many sweets I feel sick

November 1

What Is Myofacial Release?

A MyFibroTeam Member asked a question 💭
Kent in England
A MyFibroTeam Member

🤣🤣🤣

October 26

Costocondritis

A MyFibroTeam Member asked a question 💭
Rugby Warwickshire

What are your symptoms of it ?

A MyFibroTeam Member

I don’t have any more answers than the above…hopefully you’ll feel better soon 🎃

October 26

Does Anyone Have Any Experience With The Visible App And Armband For Pacing?

A MyFibroTeam Member asked a question 💭
Taft, CA

I'd like to hear personal stories of whether it's worth it or not. It looks like a good set up. I'd be willing to try it if others have had beneficial results. It's supposed to be specifically for illness, rather than for fitness, like a Fitbit.

A MyFibroTeam Member

Not sure what this is?

Old Sue

October 24

Hi. Does Anyone Get Night Thirst? I Drink 2/3 Bottles 500ml Water Through Night. I Can't Remember Drinking It. I Get Up Parched Too.

A MyFibroTeam Member asked a question 💭
Cumbria uk
A MyFibroTeam Member

@A MyFibroTeam Member Have they ever checked you for diabetes. I am prediabetic, and I get really thirsty. Maybe you should ask. Hope you find some answers. I’ll add you to my team so you can check… read more

October 24

Does Anyone Know If They Have A Histamine Dis Regulation?

A MyFibroTeam Member asked a question 💭
Yukon, OK

I was looking into why my tattoos get itchy sometimes and saw that it could be a histamine reaction and didn’t know what “histamine” meant tbh but as I was looking I found that there maybe a connection to fibro and histamine dis regulation… do antihistamines help regulate anyone’s pain I guess is also what I’m asking?

A MyFibroTeam Member

Benadryl does not help me w the pain, but it does w itching, swelling like hiving. When my allergies are really bad, i can take up to 6 a day w atarax. Atarax helps w the giving and itching as well… read more

October 23 (edited)

Wondering If Anyone Has Pain In Their Mouth? My Tongue Has Been Painful Like A Burning Or Rubbed Raw Feeling In One Side. For Years Now.

A MyFibroTeam Member asked a question 💭
University Place, WA
A MyFibroTeam Member

I’ll have to remember the salt water, mine is also infrequent.

October 28

I Always Hear People With Fibro Saying They're Hot All The Time. I'm The Opposite-ALWAYS Freezing. Is Anyone Else A People-sicle Like Me?

A MyFibroTeam Member asked a question 💭
San Antonio, TX

I turn off A/C vents on my side of the car in Texas summers, Carry a sweater and throw to movie theaters, my body temp is always 97 now instead of the 98.6 it used to be. I actually fainted once because I was outside in the heat, and didn't realize I was over-heated until I dropped (I never felt hot or even started sweating). So I guess something is still trying to regulate body temp, but it just seems like my thermostat is "broken".

A MyFibroTeam Member

Raynaulds disease or syndrome can cause these symptoms. My dr. Just figured out that I have this and now I am on calcium blockers for the circulation problem. My doctor asked about the colour change… read more

October 24
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