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Inflamation Or Not?

A MyFibroTeam Member asked a question 💭
Early, TX

I keep reading different and hearing different answers...is Fibromyalgia an inflamation issue? Does it cause it? Is it a result of it?

November 22, 2015
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Answer Summary

Members deeply connected over the confusion surrounding whether fibromyalgia is an inflammatory condition, with most agreeing that doctors... Read more

Members deeply connected over the confusion surrounding whether fibromyalgia is an inflammatory condition, with most agreeing that doctors themselves are uncertain because the disease is not fully understood. Several members shared that their rheumatologists have told them fibromyalgia is a neurological issue involving misfiring nerves and pain signals rather than traditional inflammation, though some members reported experiencing high inflammation markers, swelling, and sed rates that their doctors attributed to fibromyalgia itself or co-occurring conditions like arthritis. A recurring theme was frustration with the trial-and-error approach to treatment, the lack of research funding, and the sense that each person experiences fibromyalgia differently, with many also dealing with overlapping conditions like arthritis, thyroid issues, and nerve disorders that make it nearly impossible to pinpoint a single cause.

A MyFibroTeam Member

I understand it can cause inflimation but my understanding is that it is a neurological condition causing mixed up signals from the brain to the body causing 'pain' where there is no reason for the pain and causing this to be widespread. Basically the nerves n nerve endings are making their own game up to play on us every day n all day...... its a crap game............

November 22, 2015
A MyFibroTeam Member

The reason you hear so many different things is because it is not totally understood yet and what they do know not all doctors agree about. The issue is that the nerves cannot communicate with the brain properly. That sounds neurological, but some doctors believe that it is autoimmune or something else.
This can cause a number of varying symptoms and problems. Pain, swelling, etc are just a few.

November 22, 2015
A MyFibroTeam Member

As far as I know it is just over active nerve endings. Inflammation sounds more like RA but who knows with this crazy disease

November 22, 2015
A MyFibroTeam Member

I can only speak for me. I have had fibro since 2005. I have had a high inflammation sed rate of 95. I was told by my neurologist and rheumatologist that my inflammation is being driven by fibromyalgia.

November 22, 2015
A MyFibroTeam Member

I think the Doctor's don't know but won't tell us after all we come to them for help, so they say try this, try that, frankly I'm tired of being treated like a lab rat and used at guinea pigs for their guessing games as how to treat us. In the mean time we suffer and they get richer. My own theory is we have to find what works for us and stick to it. Be diet, exercise, yoga, alternative medicine, etc. We can't do any worse then they are. I've had this about 18 years and try to keep as active as possible and all I hear is walk, walk, walk and I do what I can when I can. Told one Dr. I wish he had to deal with the pain maybe then he would understand what we are going through.

November 22, 2015

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