I get it. I was just saying to a co-worker that I no longer fell like I belong there, but I don't really want to go anywhere else. I told her it was because the people I started with had all left to work elsewhere, and the team that I work with now I can't seem to really connect with. I love my job and what I do, and my team understands that some days are harder for me than others, but they don't really understand the whole of it. I don't feel like I can talk to them about it either, because even with their understanding I don't feel like they really care how I feel. Unfortunately I feel like I have that same disconnect with my family. I don't really feel like their is anyone to talk to.

I know how you feel. I lost so many friends and family members because of my illnesses because they don't understand what I going through or care. I have a hard time trusting doctors because some of them only care about the money and not enough about their patients. I went to so many doctors who that it was all in my head and that I was lying to get drugs. Doctors don't seem how hard fibromyalgia is on they patients so they don't even know to help us get through. It takes me forever to trust people anymore.

I usually end up losing my cool. Most people don't see me on my worst days. I try to educate the folks that don't understand. I give them the story about the spoon theory or post lots of articles on Facebook about fibro. I bought a bracelet from bravelets.com that donates a part of the proceeds to fibro research when you get one that is for fibro and wear it. Educate the ignorant and lose the toxic ones. Read up on toxic people and learn how to spot them. If they don't try to understand you don't need them. My biggest redemption was validating responses to folks that I dumped because of their hurtful neglect of concern. They'll either get the picture or you don't need them. You are your biggest advocate. Don't take trash from anyone keep you head up and boobs out. Nobody can hurt you if you walk over them.

I totally understand...We go from being so self reliant to needing people to help us more n be by our sides n I feel most don't understand our pain.Ive totally gone from a very social person to having one true friend,my sister.I hate relying on anyone n most people are to selfish to care.An drs.well that's another story I think their totally not up to date with our disease but act like they know it all . good luck n god bless
Xxxxmarcy

I have to say that when I started really having problems with family not understanding fibro, I got a book from the library " Fibro for Idiots!" and it really helped me explain it better!!! Check it out, maybe it will help you too!