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Burning Mouth Syndrome

A MyFibroTeam Member asked a question 💭
Cass City, MI

Does anyone else have BMS? If so, what have you tried that had given you relief?

June 20, 2017
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A MyFibroTeam Member

I know you posted this six months ago. Just curious if you've had any more success? I developed BMS six months ago as well and have been trying a lot of things (I've had fibro for 7 years but BMS only recently). The thing that has seemed to help me the most is actually physical therapy. They are using this machine called an "acuscope" that is like jumper cables for the nerves in my face. The BMS seems to be connected to TMJ (jaw pain) even though I never would have guessed it. It has just felt like a terrible sunburn in my mouth. I am also experimenting with different supplements (iron, B complex, etc) but the acuscope is the only thing that has really helped. Also, I use a toothpaste called Sensodyne which gives temporary relief. Certain chewing gums help but they can also dry out my mouth more so I only do that on occasion. Look for the ones with the least ingredients. The dark chocolate mints from Trader Joe's also bring a burst of coolness to the mouth (but watch out for sugar content). Anyway, I am curious what has worked for you since?

December 30, 2017
A MyFibroTeam Member

I have very dry eyes and mouth. I think some of it comes from my medication. I use Act toothpaste and mouth wash, but can't say it helps very much. My tongue burns with a lot of foods and it is disgusting. I was using Bioten' toothpaste and mouthwash but it also burns my tongue.

July 4, 2017
A MyFibroTeam Member

try testing foods that may cause it.. white bread does it to me.. also will happen if you mouth is dry for a long time.. but my guess is dietary.

June 23, 2017
A MyFibroTeam Member

I gargle with salt water and stay away from salty and acidic foods like tomatoes, chips. salsa, sausage etc. dont use any table salt or pepper. Once it goes away slowly test your foods to find out what contributes to it. It was a process for me but now i know what triggers it. I know mine comes from sjogrens syndrome. it has totally ruined my taste buds. I am not sure if it comes from the fibro or not but i am almost positive the gargle and elimination of certain foods will help. Remember, what works for me may not work for you.

June 22, 2017
A MyFibroTeam Member

@A MyFibroTeam Member

I have that problem too. My tongue and mouth burn off and on sometimes daily.have had it for years other than sipping something cold or ice cubes haven't found anything .

June 20, 2017

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