Lack Of Understanding Regarding Diagnosis
How do people cope when a family member does not understand about the effects that fibromyalgia has on you, to the extent that you are being accused of faking it just to get out of work! When you try to sit down and discuss things you get told to 'shut up' or 'I have pain to and have to get on with it'! (Especially as this family member has been told options to treat pain but refuses treatment!)
My strength comes from my Lord and savior Jesus Christ 🦋
I would normally download a list of symptoms and then a page that explains just what Fibro is and how it effects me print it and hand it to them saying if you want to understand what Fibro is then read this if you dont then stop with your comments and judgements.
I have a partner of 22 years..and we both have our own place.It works out great for me...I can rest in between visits..I don't have to cook everyday..or laundry..by nature I am a caretaker..so when I lived with him..I could not stop myself from over doing it....and when we do visit..we have more quality time because I am rested..
I don't ask for people's opinions on fibromyalgia, except if they have fibromyalgia. I've only had one person tell me that my doctor was trying to make $$ off telling me I had fibromyalgia. I told her that her doctor lied to her when he said the plastic surgery he did made her look better. We haven't spoken since then...🤣🤣
I wrote this poem hoping my oldest son would maybe understand a little. In his mind I suppose to be the woman that everything and never stopped. He tells me that you just have to get up and go. Thank y’all for listening
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