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Pain At 3am....EVERYDAY.

A MyFibroTeam Member asked a question 💭
Burnley, UK

Been battling this one for months now Drs cannot work it out so I thought I'd come exchange notes with my lovely fibrowarriors. Been struggling with sudden acute breathlessness at 3am every day. I have a diagnosis of severe reflux, fibro, asthma which is triggered by emotional upset and excercise, I have hypothyroidism and coeliacs. Every day at 3am I wake up suddenly choking as if I'm drowning coughing up literally water... It's not phlemy it's just water. After the coughing fit I'm left… read more

October 24, 2017
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A MyFibroTeam Member

@A MyFibroTeam Member have had that problem too for many years.. I agree -you have to sleep in a raised position. I bought one of those things that you use for a pillow. It's hard but I put my pillow up against it. It definitely helps. I also found that if I drink a small glass of cold ginger ale before I retire for the night it also helps.

10/2917

October 29, 2017
A MyFibroTeam Member

My mother inlaw does the same thing when she sleeps . She has to sleep raised. It turns out the flap that closes in the throat to stop the liquid coming up relaxes when she sleeps an in return the liquid comes up an she feels like she is drowning from the fluid she brings up

October 26, 2017
A MyFibroTeam Member

Praying for you!

October 25, 2017
A MyFibroTeam Member

Maybe in your subconscious there is some anxiety coming out that you have experienced during the day? Or maybe you are in REM sleep for a certain amount of hours and your body wakes up when you come out?
So strange. Just trying to brainstorm. I hope it stops soon and you can get some relief and rest.
xxxx

October 25, 2017
A MyFibroTeam Member

Hello this may be out of left field, but some of what you said resonated with me. I have had wheat-dependent exercise induced anaphylaxis since a teenager. I was just recently diagnosed with FM and doing a lot of research. There is some research showing that the exercise-induced asthma/anaphylaxis may actually be a sign of histamine intolerance. Interestingly, I also wake up around 3am every night, not choking, just wake up for no apparent reason. Apparently, histamine toxicity peaks at around 3am based on circadian rhythms. Not sure AT ALL if this could be your problem, but I have been avoiding histamine heavy foods (aged cheeses, cured meats, fermented foods and beverages including soy sauce) and taking a daily Claritin for a few weeks and I have not only been feeling much better, I also stopped waking up at 3am. Maybe worth a try?

June 8, 2023

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