They said it was Orthostatic Hypertension and the ER gave me canned gaterade and walking papers! Thank you for asking this question, it hit quite a nerve!
August 2017, I had another episode. It happens when I take Gabapentin and Norco so I try not to take those close to each other. I have had these episodes since my father left the family when I was 14. I had stress overload.
When it hits me, I usually am getting up from sitting down or lying down or if I've turned around too fast while standing. I can't see anything, saying anything, move except to sit down or lie down but I can hear everything.
My mom has started yelling at me hysterically or saying to make me mad, trying to get a response out of me but I can't do anything but sit or lie there.
The only person who told me what I had was a nurse once when I was getting my blood pressure checked. Not one doctor has helped me with it, oh wait one when I was 22. I saw him for an ulcer and my blood pressure was 80 over 60 when I stood up. I was only 125 pounds. He said to eat salt or wear compression socks.
@A MyFibroTeam Member God bless you. Gentle hugs.

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A MyFibro...

Dr's thinking I am a lair and a nutter I have had myself, I know many who still have this or get this treatment Globally. I was very lucky in the fact the very first Dr I presented my pain to was a pain specialist here in Scotland. Helped me a lot, probably saved me from myself. I have a different Dr now and they are really lovely. I am always being sent Fibro articles by family and friends, but for me it's false hope as like you, like many, I would love some help now...
Keep on Keeping on..
x

@A MyFibroTeam Member Orthostatic intolerance
Orthostatic intolerance is the development of symptoms when standing upright which are relieved when reclining. There are many types of orthostatic intolerance. OI can be a subcategory of dysautonomia, a disorder of the autonomic nervous system occurring when an individual stands up.
Wikipedia · Text under CC-BY-SA license

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A MyFibro...

I have heard of it now thanks to you! I'm going to find out what my Dr knows too, this explains so much! I have many of these symptoms daily. I always thought I might be weird for pulling my legs up when I sit... lol, you know as an adult, sometimes I feel like I'm climbing in my chair like a kid. It makes so much sense now, I could never walk and talk on the phone without getting winded. I love this group because it helps carve out short cuts along this long thorny road we travel... warm gentle hugs @A MyFibroTeam Member !

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A MyFibro...

I have been seeing a doctor in Hamilton ON for this very thing for a few years. I am currently receiving IV Saline treatments, midodrine and Myrbetriq. IV treatments are 2 times a week for 1 month 1L infused over 4 hours then once a week. Once humidity hits and I sweat insanely I may return to 2xweek. My Midodrine 2.5 mg is 3 times a day regularly with a prn when I am going shopping or anything requiring standing longer periods. LIFE CHANGER FOLKS!!!! My Myrbetriq is for my overactive bladder. I can not retain my fluids long enough to absorb them...hence the hydration over 4 hours. I have had cystoscopy to confirm low threshold and small bladder.
Compression Stocking were also prescribed...the tightest you can stand and he actually wanted them to my stomach. I couldn't do it. Also, the tighter they are the more energy they require to put on. Learned that lesson, plus I couldn't handle the that much constriction. I am currently using the 2nd tightest and only knee high.
I have been ordered Florinef and tried it twice. Unfortunately it increased my fatigue and I couldn't stabilize so I gave up taking it. I will attempt using it again. It helps with maintaining Salt Levels. As we all know...the wind blows and things change within our bodies. lol so I may be able to tolerate it at a later date.

Almost forgot to mention... I was diagnosed with OI after I saw a Cardiologist at an Arrhythmia Clinic in Hamilton for the palpations I felt. (beta blocker helps with that) He sent me to his colleague who also specializes POTS and OI. After completion of a Tilt Table test I was given the diagnoses.
My body is basically stuck in Fight or Flight Mode as are many of us.

Daily, Increase Salt Intake and Drink 2.5-3L a day.

I hope this helps :)