The pain became more wide spread (no part of my body is spared, head to toe), pain used to just switch from one place to the other about every six weeks, now it is pretty much every where on a scale 1-10, steady 4 all the time, that is baseline, that is on good days. Did I have worse symptoms than pain ? Yes, so called fibrofog for 2 years (its gone for now), extreme dizziness (all the time for 4 years, now it is much better) these symptoms for me were worse I think than the pain. I do feel it is progressive in my case,however just not so long ago I met a fellow fibro lady, she used to be in wheel chair and she used to be on narcotics for the pain, now she is out of the wheel chair, functional, still in pain most of the time, but she is better for sure, off of many of her old meds.

I know where the President and others are coming from with the pain meds. However, what about people like me and others who have some extremely painful days. I have been on pain meds for Fibro since 1993. I have never abused my medication. Most months I do not come near using my entire Rx. But, if you tell your physician they will reduce your dosage and if you have a severe problem (like I do when the seasons change or I am under a barrage of stress) that is when they will choose to d/c working meds and try some new drug that does not work and you.the patient that is being responsible and who is already suffering, pays the price for others who are irresponsible or worse drug seekers cause you to suffer... After all these years I know what works and does not work. I find it confusing and counterproductive to take some new medication for Fibro that is a required dosage every single day when I can take Zanax or something similar for a day or two or Hydrocodone when the pain is excessive and be drug-free the most of the time. Again, Personal responsibility has gone down the tubes and prescribing something that must be taken daily and does not work keeps the doctors out of trouble & the patient in pain trying to keep some law that does not involve them.
When I find a solution that, most of the time, keeps me in a lot less pain and am denied the ability to do so because someone else will not take responsibility for their lives it really seems so very, very wrong. How do you all feel about not being able to get these meds that keeps us from being totally unable to function? Sometimes I feel like I cannot stand the pain and have so little in my life when I cannot do normal activities so many take for granted.
I was in the medical field and we have been so blessed with meds that can put people out of pain, The desire is to help people with pain possibly live a more normal life. We deserve to be able to do so. I hate hearing or seeing families, homes, etc., destroyed by drug abuse, but I also have a hard time agreeing that those of us who take Personal Responsibility for our actions have to be in misery for people who do not. .The drugs are coming across the border every single day. People who are for open borders do not realize that one day it may be them in terrible pain and denied access due to the despicable drug cartels and the politicians who are giving them free access to our weaker brothers and sisters and our children...And, why? Right now the government cannot control the illegal drugs but believe or hope they can control the FDA. People who need medication for pain are paying the cost of a deviant desire for money & control. Think about it if you can without getting very sad and/or depressed.

I was not suffering one year ago like I do now. I read, after the first few years you will maintain and maybe improve. If you worsen then it will probably be permanent. I honestly think it is a case by case basis and depends on the stress we have in our lives.

For me, it hasn't gotten worse, it just changes. I have had the same diseases for 18 years, and it can change hourly. I never feel like ii know what my body will do: frustrating!

Mine has definitely gotten worse over the years. In the beginning it was only bad in the winter, but then increased to fall, winter and spring! Then in the last 4-5 years, summer has been added so it’s constant 365 days a year. Plus my pain areas are now from my ears to my toes and of course fibro fog and everything else has been added! Absolutely hate this illness!