Connect with others who understand.

Sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Moms - How Do You Handle Caring For Your Kids With The Pain And Fatigue?

A MyFibroTeam Member asked a question 💭
Salt Lake City, UT

I have a 2.5 year old and a 2 month old. I really struggle having the energy to do everything. I feel like I live on the couch. What are some things that help you get through the tough days?

August 5, 2019
View reactions
A MyFibroTeam Member

I have a four year old Very Active son, and I have mommy time activities he can draw a piece of paper out of a jar to see which activity. I have all of them be what I know I can do most of the time. If he wants to do something I’m not up to I bargain one activity for another or we do this when I’m feeling better. Here are some of the activities: movie time, story time, magazine time, craft time, look and find books, coloring together, outside time ( I go out and watch while sitting on something), cuddle time, etc...

October 10, 2019
A MyFibroTeam Member

I'm the same. I have a 3 year old and 1 year old. They are so full of energy and constantly fighting. My son is now at an age where he understands if I tell him mummys back is really hurting today he is gentler and that's why I can't play with him as much. But I often let him just play all over me Eventhough most of it hurts. At one point I pretty much stayed on the floor constantly just so I could interact with them more. But I do make sure to always do bedtime as it's our special time and I tell them a million times a day I love them. And on good days I try to get out even if it's just to Costa to get some food or to ASDA with a cafe so we can have lunch out.

August 7, 2019
A MyFibroTeam Member

Sorry to say, I had the same problems when my children were younger. I even often times had to pull off the rode when I was driving and pretend to have something I wanted to show my kids.
The sad part is that now that my children are grown, many of their memories was of "mom laying on the couch". Try your best to engage your tiredness as games so that you don't get the double whammy of hearing about your life through their eyes. Make tents and play "Fort" or read books. Anything that allows you to lay down as part of the game.

They now understand why mommy was always laying down, but it makes me feel bad.

August 6, 2019
A MyFibroTeam Member

I have the same issue. I feel like I live on my bed, my youngest is 2 1/2 so we have playtime in his room while i lounge on his bed(twin bed). I can't breath well out doors so it's typical quick in and out play time.
I have multiple monthly appts which are a challenge to do alone. Don't beat yourself up taking it moment by moment is okay.

August 5, 2019
A MyFibroTeam Member

I act as "mom" to my beloved 88 year old mother with heart disease, pace maker, Alzheimers and Dementia, and
Let a plethora of other diseases. Recently, Sepsis, Ecole, UTI, and Delerium set in.
ER visits exacerbated her conditions.
She was hospitalized. Thankfully, she made it.
I eat healthy, stretch, breathe, meditate and pray before I go stay w/mom for 5-8 hrs.
Upon leaving her home, we practice my same morning ritual - releasing any emotional, spiritual, mental, and physical pain. A state of calm is instilled.
My visits include preparing us healthy, colorful and tasty eats, w/mom's help or guidance.
We play board games, dominoes, and color to stimulate both our minds.
We converse about her vivid past, as if she is creating a beautiful canvas that I happily imagine and envision: a red farmhouse, farm animals and various crops, trees, and a flowing stream, all under a magnificent early morning rainbow that the rainy night guaranteed.
We play old music dear to her heart. We look at old porcelain dolls on my IPad.
She shares which ones her daddy would bring home on birthdays. We talk about the lovely clothes she would sew for me and my 6 siblings.
We agree to take a nap. As I relax in a 2nd bedroom,
I thank God for His strength and guidance.
M.y mom's mood and stories may differ after her nap. I listen and offer calmness if she recalls a bad or painful memory.
We delight in a dark chocolate as we sit and practice light stretches, hands in the air, claps, simple, yet engagingily active.
We plan a small
dinner menu. before my sister returns to be with mom.
As I leave their home, I feel such gratitude and accomplishment for putting my mom's declining health before mine, that is manageable.
Each visit is almost routine; therefore, it becomes easier and more enjoyable.
My mom adds to my overall well being.
I stretch before bed, dance alone to Van Morrison, think pleasant thoughts of my late husband. Pray.
I sleep more soundly and wake to a new canvas that I visually create,
including a magnificent rainbow.
My favorite: me w/no pain of any kind, not even from this rare neurological momement disorder Meige Syndrome Orofacial and Cervical Dystonia.
.y motto: Forget the pain. Let it rain. Theres always a rainbow that makes wishes come true!
Namaste,
Let

April 4

Related content

View All

Could Have Going Through A Abusive Relationship Brought On Fibromyalgia?

A MyFibroTeam Member asked a question 💭
Detroit, AL

How To Find Friends On Here That I Already Know

A MyFibroTeam Member asked a question 💭
Meadville, PA

Have Any Been Disappointed By Family Not Really There For You Or Just Not Caring? How Do You Deal With It?

A MyFibroTeam Member asked a question 💭
Alberta, Canada
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in