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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Should We Donate Organs Upon Our Deaths?

A MyFibroTeam Member asked a question 💭
London, ON

I've let my children know that I wish not to donate my organs when I pass away. The daily pain that I go through I would never wish upon anyone. I don't imagine that any research has been done on this. Knowing how debilitating Fibromyalgia is I don't want to subject someone else to the same fate.

November 14, 2019
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A MyFibroTeam Member

Being an organ reciprient - I respect that. I do not see a connection but better to be safe. There are enough healthy people to offer these vital organs, soon it will be normal but families still decide.
Fair and normal response but I would not trade anything for my healthy Tx - it is life. Pain is just part of it.
While science is my background I cannot say if your organs are a negative based on pain but I respect the choice, again.
Pain is Nothing vs death is all I can say.
Best of luck.

November 14, 2019
A MyFibroTeam Member

Since you added later that one of your organs is diseased, I think the question that you posed is entirely different than the way it was presented. The question asked posed organ donation based on pain from fibro possibly being transported with organs, assuming physicians don't transplant unhealthy organs to save a recipient's life. You later revealed that one of your organs is diseased so the update is kind of a red herring.

Epistemic logic aside, I'm sorry you have cirrhosis and I can understand your reflections on it.

I chose to be an organ donor. I'm confident that my organs would be helpful to save many lives and I don't believe that my CNS would transfer to recipients. I think their nerve fibers in their brain would dominate and if necessary, "reroute" any "defective" organ nerve connections.

November 16, 2019 (edited)
A MyFibroTeam Member

I'm an organ donor and I agree with straw34--I don't think our organs could over-ride the CNS of the recipient.

November 18, 2019
A MyFibroTeam Member

Since I have liver fibrosis at 40% as well I don't think it would be helpful. But I'm also thinking about the chemical soup that Big Pharma pushes on us like drug cartels. It damages our internal organs in ways that need to be independently studied more. Actually this whole thing needs to be studied. As I said I would not wish the pain that I live with to anyone else.

November 16, 2019
A MyFibroTeam Member

From what I’ve been told and read fibromyalgia is to do with the brain and the nerve connections so any other organs are safe to be donated

November 16, 2019

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