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Has Anyone Been Diagnosed With Somatoform Pain Disorder?

A MyFibroTeam Member asked a question 💭
Essex UK

Recently been to see GP regarding unbearable pain. He has changed my meds around. seems to be working. Fingers crossed. However, I notice he has put Somatoform pain disorder in my notes. From my research it would appear to be a neurological problem and was once called 'Hypochondriasis' amongst other things. I know from a fact that to me the pain is only to real for me. I will query why this is in my notes in 2 weeks time when I see him again.

December 28, 2019
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A MyFibroTeam Member

If your doctor has put Hypochondriasis in your file, he/she is calling you a hypochondriac. This is not acceptable for any doctor to put in your records and you should find a new doctor who supports you.

December 28, 2019
A MyFibroTeam Member

The GP I had for many years retired just about the time my symptoms started and knew me very well. I think my experiences with doctors, etc. would perhaps have been different/better if I were still going to her. My “newer” GP, who is on the younger side, shrugs and says FMS used to be called Rhuematism back where she comes from (Russia). She told me the only thing you can do for it is “be happy” and practice mindfulness. Dismissive of FMS. I just looked at her with an incredulous look and she shut up after that. Another way to say it’s basically psychologically based. My xrays, MRIs, etc. do confirm arthritis and degenerative disc disease which has deteriorated from mild to moderate to now severe in many areas of my body in just a few short years, so there’s no denying the pain is real and bad. She believes the pain is caused by OA. She just doesn’t see all the symptoms being linked and I disagree. I’ve often thought to change doctors. She is pretty useless when it comes to treating my chronic illness but will refer me to pretty much whichever specialist I request so I’ll keep her for now. I limit my visits to her for annual physicals, acute illnesses and prescription renewals and leave it at that. My hubby has a great doc that would take me on but trouble is he will likely retire soon and his office waits are atrocious.....2 hours is typical. Problem is the way physicians are trained, to deal with acute illness and you must fit the diagnostic mould. When they don’t know what to do, or don’t care to explore too much when it comes to chronic illness, then they determine it must be psychological and the patient becomes the “problem.” Find a new doctor, this one does sounds very disrespectful.

December 28, 2019
A MyFibroTeam Member

If your doctor is willing to work with you to get you the meds you need, you may need to stay with him. I've often found that my doctors put diagnosis down that I have to look up and they are just something to get the meds to be ok with the insurance company. So of course you should question the diagnosis but give the doctor a chance.

December 28, 2019
A MyFibroTeam Member

Good morning. Unfortunately there are too many doctors who don't understand or accept that fibro is a real illness. It took a whole year of being in agonizing pain especially in my legs and arms. I began to have trouble walking, where I needed a walker or cane. I had been going back and forth with my internal meds doc before I became Fed up with her attitude about this pain. It even got to the point where she became condescending towards me. That I find very disrespectful!. Unfortunately with the opioid crisis docs think anyone complaint of pain just want drugs. You may need to find a good rheumatologist. Best of luck hope you get some relief.😎🙏

December 28, 2019
A MyFibroTeam Member

My doctor said Fibromyalgia is in our head. I know the pain I feel is real. I hope you get a answer to your question.

December 28, 2019

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