Oh, honey, I feel ya. When my husband asks what he can do, sometimes I just want to scream “ just make it stop!”
As a nurse as well as fellow Fibromyalgia sufferer, My advice would be to tell him your long term goals are to have a day where you can make it through the day with a pain level that does not reach more than 5/10 on a pain scale. They don’t know how it feel unless they have a chronic pain issue as well. Then with that goal you can look into options that lower your pain, whether it be frequent rest, lower physical/emotional/mental stress, medications, whatever it takes. My guess is He just wants to be able to help and doesn’t know how. With a long term goal in mind, the baby steps and fails along the way can be a bit easier to handle.
Other long term goals can wait. Nothing can happen until you have an effective plan for pain control. If it’s a bad day, rest, medicate, meditate. If it’s good, move forward with plans. All long term goals can be reached. They just take longer when you deal with chronic disease. Be kind to yourself, honey. You got this. Help him understand the waxing and waning of the disease and perhaps he can step up on bad dayys and you take over on good ones.

I think your so right , it’s the disappointment in yourself when you put it out there . Theses are my plans & then fibro throws its ugly head in & your plans clatter to the floor🥰😘 Be true with yourself take things daily & don’t punish or beat yourself up. I will say reading your words has made me question myself so thank you 🙏. Sending my love 😍 to all my fibro friends

Wow...that beast keeps rearing up his head a lot. I am turning 60 this month. I look around and see a house that I am terrified of, if anything going wrong with the house because I cannot afford it. I know I should be in an apartment but that does not seem right at this moment. so I have to standstill and leave it to God. I am sorry , but long term plans are so far away for someone like me, its hard to believe that I would have one. I know that is strange. But I do agree with TerriW.. One Day at a Time...is a very true saying and Leave it to GOD
LoriRoberts says it all...talk to him about everything you feel Plus, be kind to yourself, (my doctor once wrote on a presciption pad, "I give you permission for you to take a vacation FROM YOURSELF"). That to me was a WOW. I was worried all the time, concerned about everything all the time ....that type of thinking is not healthy. AND the Should've, Could've, Would've and the What if's are something, I do not think we fibroites can get into....that takes away from us and we are GREAT PEOPLE CAUGHT UP IN A STORM WE HAVE NO or LITTLE CONTROL OF...but we do our best.
Talk to him, tell him your feelings, fears etc..he needs to know this from you and he needs to know everything, you just wrote about....show him that if everything else fails.
Be kind to yourself Baby....I will be praying for you....worry and stress only adds to our disease...
One day at a time....Give it to God and step back...He will give you the words that need to be heard by your husband.
Love ya Cindy Croft

These are such great advise. I Know I am not alone. You are all the best. Thank you so much.
I have to plan my outings and vacations as it gives me encouragement to get out of bed pain or no pain. I am now going cruising next month and will just live on pain pills and enjoy. Life is short so make the best of it, One day at a time. Warm hugs

Same here! Could make plans and deal with the pain. Now I am having stomach cramps and diahrrea. Never know when it will happen or how bad it will be. I will have a long list of things to get done and some days I do well (rarely getting them all done) and other days between the fibro and stomach issues it seems whatever I am doing my body tells me to stop. I go sit and rest and fall asleep. I feel disappointed in myself but I just do the best I can with how I am feeling at the moment. I take it day by day. I can make plans with my fiance for the weekend and many times it doesn't happen due to how I am feeling. So long term plans...I understand your frustration! Hang in there.