Where Can I Turn For Info?
I've been diagnosed with fibro for a year in June and honestly all I know about it its what I've read online. I have just gotten a new PCP and she says that, though it is suggested I see a rheumatologist and and endocrinologist (for my thyroid) as I've never seen an endo and I've only seen a rheum once to be diagnosed, "they don't like to be bothered with fibro cases". When I asked her to explain everything and talk through treatment options I got a half page print out that said don't stress and… read more
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After years of physical, emotional, and mental pain, I was referred to the above M.D.
Not only did he help me improve overall, he also, had such excellent Notes, Diagnoses, and Coding, that, allowed me to receive Social Security Benefits due to being Permanently Disabled.
In the past, I had been Denied Social Security Benefits.
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I am so sorry you’re going through that. Not having a good doctor is so frustrating. My “primary care” doctor of choice is actually a physical therapist. They understand muscles and joints the best and can quickly and empathetically help with pain. But if you’re looking for more help with medications then a rheumatologist or neurologist is better. Another type of doctor you can try is an “integrative doctor.” Warning though: many of these doctors completely disagree with each other. But at the end of the day, you are the one who has to decide what style of medicine and treatment you prefer more (the more natural but possibly less “scientifically proven” route, or doing more trial and error with prescription meds). I have experimented for about 9 years now and Physical therapy and some great liquid vitamins have helped me the most.
Sorry there’s not a definitive answer, but don’t give up searching for good doctors and experimenting with what works well for you. Happy to share more as it’s helpful.
What she said is a generalization which means sometimes it's true and sometimes it's not.
I don't necessarily think that she was discouraging you as much as giving you a dose of reality from her point of view and possibly trying to help you not get your expectations too high.
You might choose to ask what specific doctors she might be aware of that wouldn't be open to fibro patients so you will know which ones to avoid or... just call individual offices on your own and explain to them that you have fibromyalgia and ask if that is a diagnosis that they would be open to treating along with their specialty.
First, find a new rheumatologist, one that "won't be bothered"...... Sometimes a nurse practitioner will handle the fibro patients too, rather than an MD or DO. Plenty of medications out there that can help as well...... Cymbalta is only one of them. Meds won't make you pain free, but they help a little. Gabapentin, Lyrica, just to name a few. For really bad days, Tramadol. And it depends on the person too. While Cymbalta and Gabapentin work for me, they may not work on someone else. It's trial and error. Find a good doctor to help you along the way and willing to work with you. First step.
You can go to the mayo clinic .org for more Info about fibro. I have been blessed with.good doctors over the past 20 years. I have had th same doc for 13 years now that we have settled down. I have a rheumatologist I see every 3 months. I hope you find a doctor seen. Find one who treats chronic pain.. Hugs
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