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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do You Have Restless Leg Syndrome?

A MyFibroTeam Member asked a question 💭

My legs hurt all the time as well as my back

November 4, 2022
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A MyFibroTeam Member

I have been seeing a pain management doctor who has diagnosed me with inflammation in my SI joints. Waiting for approval for an MRI and joint injections.

November 15, 2022
A MyFibroTeam Member

Do your legs and back hurt non stop? I suffer so bad

November 7, 2022
A MyFibroTeam Member

I do, my legs also hurt a lot and get really swollen, if I walk a lot, or if I lift something heavy, even when weather changes or just because... My right side and the lower back are always a big big issue.

November 4, 2022
A MyFibroTeam Member

My legs hurt when trying to relax. On left side it goes down in foot. Feet and left hand continually go numb

November 4, 2022
A MyFibroTeam Member

Yes, I have restless legs and take pramipexole for it. I've tried others, but this is the only medication that has helped, yet I still have breakthrough restless legs and have to take additional medication around 2:00 in the morning. I also have restless legs in my arms and back. It's just a nerve agitation, so you can actually get it anywhere if you have it severely enough. In addition to that I also do have swollen ankles because of my thyroid problems, and my legs do cramp an awful lot, though I wouldn't say non-stop. Although I guess it's possible it's non-stop, but I've just learned to block out the pain. I do have low back problems also because of SI joint being damaged in a car accident, and now I'm almost F
frozen from arthritis. Radio frequency ablation in L3-5 helps a whole lot with this type of discomfort. Are you also having sciatica pain? You can have sciatica pain alleviated by getting epidurals in your lumbar also. I do both the lumbar and the RFAs on a regular basis to keep this discomfort under control. I suggest you also look into taking potassium because it helps with leg cramps. I take a combination of magnesium and potassium because with fibromyalgia, magnesium is important to help our muscles. Talk to a compounding pharmacy and get the best mixtures that you can. Stuff at the grocery stores is not as good as the things that you can buy at a compounding pharmacist. Good luck!

May 23, 2023

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