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I'm Confused On How To Keep Track Of Any Comments/replies Made To Me- If I Haven't Answered Anyone Back, My Full Apologies!

A MyFibroTeam Member asked a question 💭
South New Jersey , USA

Confused about notifications on here

April 9
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A MyFibroTeam Member

Also, maybe the CIA could try figuring out how to mind control all our symptoms away. I know I'm not the only one to be told all of it is in our head

April 10
A MyFibroTeam Member

I get lots of insomnia too. Then I guess crash out from exhaustion. Stupid aliens. (That's what I call all my health problems since most have no known cause and/or very little help in controlling the symptoms.
I hope you get some rest soon!

April 10
A MyFibroTeam Member

My long alien story started with a kidney stone that got stuck and required an ER visit and surgery to remove it. The docs saw one of the junctions of my kidney was all warped which ended in a much bigger surgery.
And I've been ill ever since.
Got chronic stones, a busted junction on my kidney (sirgery ended up being a short term fix it turned out- so off and on hydronephrosis fancy world for a backed up kidney; that all lead to many docs and finding one who diagnosed me with loin pain hematuria syndrome, pain docs have be listed all that and chronic regional pain syndrome as well as merve damage in many spotx, and then Fibro- and all the fun we all seem to have in common.
Oh and busted discs and nerve damage all up and down my spine, somethings wrong from top of my neck all the way down to my hips and butt bone, , endless sinus problems , digestive ones and I forget what else at this point lol

I've always had aches in my body as far as I can remember, but was functional. A stuck kidney stone somehow turned into a whole decade now of endless doctors, endless tests, endless yrs of docs telling me shit is all in my my head or finally finding ones that diagnose me with stuff that's is just by Xing put everything else and a lot of little data/aid /help.

We also have several cancers that run in our family but so far that alien hasn't gotten me.
My sister has Addisons disease and something else with it.

What autoimmune disease do you have?

Flonase seems to help my sinus stuff. Saline spray. Sometimes an otc of sinus/cold meds if necessary.

I didn't believe the navage actually helped! I might have to give it a try.

April 10
A MyFibroTeam Member

I like your nickname flr all of the problems lol

I feel like I have a permanent sinus infection. So I take daily allergy meds and cold meds and blah. I feel like all I do is take meds and they only partially work on my good days.

April 10
A MyFibroTeam Member

We could do pigieon carrier. Lol

April 9

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