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Does Anyone Else Want To Give Up Going To The Doctors With Anything That Doesn’t Feel Like Fibromyalgia?

A MyFibroTeam Member asked a question 💭
Letchworth Garden City, UK

I have had fibromyalgia for 10 years (since diagnosis), and lately I feel that all is not well. My father had a muscle wasting disease and died at only 57 years old. He has a twin brother that also has a muscle disease and two of his daughters have it too. My uncles disease is different to that of my father’s, but symptoms are similar. I have looked into my Dads disease and it seems it can be hereditary and as they learn more about it, it does seem to affect more women. I asked about this and… read more

April 9
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A MyFibroTeam Member

Yes, and I've recently written to my GP who thankfully has never said anything like this to me. Saying that from now on I will only be requesting appointments with him and another gp because the others don't respect me as a patient because my conditions are invisible and until this is sorted I'm refusing to have anything to do to with the others. Please find a gp who believes in fibro and/or your other conditions x

April 10
A MyFibroTeam Member

I've found that as soon as your Dr knows you have fibro, it becomes a "catch all" and everything will be blamed on fibro. And they don't want to look at/for anything else. 💖

April 28
A MyFibroTeam Member

Please do not give up. A healthy dose of skepticism is always necessary when you have fibromyalgia. Some doctors have the tendency to blame every symptoms on fibromyalgia if they know you have it. My doctors are the opposite, none of them care that I have fibro diagnosis and start chasing all sorts of "illnesses" to rule them out, which is probably the right approach. At the same time I have to remind myself not to get too stressed because it is most likely just a flare up of new symptoms. In your case if you have any doubt discuss it with your doctors. Perhaps ask for second opinion., look for an expert regarding this hereditary condition. By all means go all the way to clear things up. If there are possible treatments, perhaps preventative measures it would be nice to find out. Also, what can you expect, prognosis in your specific case, what to look out for.

April 10
A MyFibroTeam Member

I agree I really hate the fact that you can only deal with one thing at a time. They won't give you enough a time to hardly talk about one thing let alone if you have more than one. I don't have the energy either to keep going back. luckily right now my insurance is still covering telehealth visits but I heard that in 2025 Medicare will no longer pay for telehealth visits except for mental health .
so that means to keep running back and forth to the GP. Keep trying to find out what is wrong because everything is not fibromyalgia .hugs

April 13
A MyFibroTeam Member

Myself and a friend were saying exactly that the other day, she also suffers from many of the same conditions and I've only met her from going to aqua classes. I have decided that when I'm off work I'm going to book an appointment and do my symptom list again, this was how I first got diagnosed years ago, and ask my gp to go through all the symptoms and write what is what, as there are some that have never been looked at and I just put down to fibro but are they or is it something else. But as they are only minor or I feel they are I don't do anything or I have worse problem that need sorting. We put up with so much

April 13

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