That’s got to be super frustrating. The cardiologist in town just diagnosed my teenager with Pots. It’s also another invisible illness. The Mayo Clinic in Rodchester, Mn has specialist that are knowledgeable about POTS. I’m still learning about it .

A cardiologist can diagnose POTS

I’m so sorry. My kiddo was just diagnosed with POTS. But mama has a gutt feeling that something else is going on at the same time because his immune system is horse poop and his symptoms from any virus are like a thousand times worse than a non sick persons. They are going to test now for Mast Cell Disorders. Drs visits have been never ending lately. Poor kid! 😩🥹😭

Yes, my doctor diagnosed me with Paroxysmal sinus tachycardia but said it's most likely POTS (either instead or in addition). My tachycardia and dizziness is the worst when I stand up from laying down, so I think its definitely more likely to be POTS. I'm also being tested for pheochromocytoma, since the symptoms are very similar to POTS and my cortisol was very high when I got bloodwork recently. I've never though I would say I want to have a tumor, but pheochromocytoma would be preferable to living like this with the POTS (my resting pulse can get to 150 and I've always dizzy and even more exhausted than "just" dealing with the fibro).