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What Have Your Local Resources For Fibromyalgia Been Like?

A MyFibroTeam Member asked a question 💭
England UK

There seem to be a lack for us with Fibromyalgia.
Parkinsons, MS etc there seems to be more online and off from my understanding.

If there was something, would you think of joining it? e. g. An outside meet up kind of group?

Is it just it's hard to find or that they don't exist?

One of my GP's when I mentioned that to her suggested a walking group. 🙃

What do you think you would need from one if there was such a thing? Just curious.

May 23 (edited)
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A MyFibroTeam Member

We have to be our own Advocates

May 23 (edited)
A MyFibroTeam Member

It's an interesting idea and it came to my mind in the beginning as well. Then, with some reflection on my old book club ....
- I missed it most of times for reasons we all know.
- had not read or finished the book
- having to ask for a ride to and back
- feeling overwhelmed when they were having a lively discussion
- as I wanted to say my piece, the conversation had gone a different direction
And, more .... Then I thought, Hmmm ... how many attendees a fibro support group would realistically have every month? None or very few .... a few who would barely able to share much as you said @A MyFibroTeam Member!
I wish a director ventured to making a movie on that. I would be going to the theater with my shades and earplugs to watch the movie and would stay in bed for 2 days to recover from the excitement and overstimulation.
So, to answer your question, personally, I wouldn't join one if there was one in my area. I've found ourspace here a wonderful space from different perspectives. I'm quite content with being a part of this team.
Do you think I could have contributed this if we were sitting together? Nope!
Hugs! 🌷💜

May 23
A MyFibroTeam Member

Guess I lucked out again. I have a neighbour who not only has fibromyalgia, but also a son with autism. My son has Asperger's (think Sheldon on Big Bang theory)so my problem with him was much less than she has.wirh her son We don't talk much about either situation, but often give quiet support to each other and exchange knowing looks at times. It's a very comfortable friendship.

May 24
A MyFibroTeam Member

I think it would be nice. To meet people who have the same issues and understand you.

May 23
A MyFibroTeam Member

Pretty ordinary. I have found all my resources online by myself.

May 23

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