My family and past friends along with others don’t understand either , they can’t see it and they can’t feel it . Bless you

Hi Rebecca. I've had Fibro for around 20+ years but diagnosed after 12 years of doctors appointments & no answers or reasons given for my symptoms. Even now new symptoms appear. Six months ago I began experiencing burning sensation on my left upper leg. It just comes on regardless of what I'm doing, sitting, walking, standing, laying down, when I'm active or resting. It literally feels like my leg is on fire but weirdly its not hot to the touch. In fact the whole area feels numb. Occasionally I get a sharp stabbing pain in the same area. Feels like a giant bee has stung me. I don't know how common this symptom us with our other Fibro friends, but if you can relate to this you have my empathy. I'm due for a physiotherapists appointment soon to assess it (it seems that physiotherapists are the bees-knees these days, and doctors are referring patients to them for most conditions) My cynical opinion is that referring to physio is an effective way of getting patients out of the surgery quick. The problem is that very often, after weeks of waiting to see the physio, the phyio then refers you back to the doctor or onto a consultant and the treatment becomes delayed for weeks ir months.
If I do get some reasonable diagnosis or treatment for the burning pains I'll update you on this post. Best wishes in the meantime. Kind Regards.
🙂