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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Why Do We Have To Put On Airs So To Speak And Can't Be Real??

A MyFibroTeam Member asked a question 💭
Lexington, KY

When I first started out with the diagnosis of fibromyalgia people would ask me how do you feel and I would try to act like nothing was bothering me now since I am sicker and someone asks I tell them the truth.

July 20, 2024
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A MyFibroTeam Member

I’m open and don’t hide my health condition. I think it’s best to tell people how I’m doing instead of hiding it. God bless!

July 21, 2024
A MyFibroTeam Member

After over 20 years with fibro, I am more at peace with claiming my discomfort to others. I do think that most people just want to be understood and not seen as a complainer or in need of attention, ya know? So that may be a primary reason that we hide our pain. And let's face it, fibro is a complicated, hard to explain disease. So its exhausting to try to get people to understand it. AND THEN, do you remember the days when doctors would say that Fibro wasn't real?? I still have PTSD from my early days of seeing doctors and having them literally roll their eyes at me and saying "its all in your head". Good Lord, its crucial to work with doctors that truly understand this condition and don't belittle you. This was another huge reason that I would "hide" my condition. Anyhoo, it is time to be real with those that care about you. I recently had a bad flare up in front of one my sisters (because she used to live far away, we didn't see each other for years) . I broke out in a rash along with other symptoms. She freaked out!! She is now understanding the complexity of this disease and it feels good to be validated.

July 21, 2024
A MyFibroTeam Member

I am open about my Fibromyalgia. If I am in pain I will say so. Whoever doesn't want to hear doesn't have to listen and it's their problem. I am doing the best to take care of my problem. Sorry if I sound rude but people don't have a problem with talking about many other illnesses so why can't we. Maybe they will learn something.

July 21, 2024
A MyFibroTeam Member

Cheryl 💗
It's Their problem, not yours.
You have enough to deal with, with fibro, and health issues. Pacing, and learning not to overdo, is still difficult for me, after decades.🙄

Have the Best day possible.

Ann

July 22, 2024
A MyFibroTeam Member

I worked many years at a job where everyone didn't believe me as to them I looked just fine on the outside. My mother in law, God rest her soul never understood it either. It was like being Cinderella. When we would visit she always wanted me to clean her house, which I would have had no problem except for the pain I was having. I would try to tell her but she never really understood the condition. At the time I was doing good to get my own house clean.

July 21, 2024

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