Connect with others who understand.

Sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anybody Have Excessive Daytime Sleepiness/ Narcolepsy?

A MyFibroTeam Member asked a question 💭
Pittsburg, KS

What do you do to manage this?

November 23
•
View reactions
A MyFibroTeam Member

You are coming off a lot of prescription medications

I hope you're tapering. Most of those should be slowly stepped down.

Also,some supplements do block and or help script drugs.

November 25 (edited)
A MyFibroTeam Member

Oh sorry for drugs, Adderal 10mg salts xr and the 5mg in the afternoon, for adhd bonus helps with fibro, Unless I am just truly in need of sleep. I am currently tapering off Belbuca for pain bc we wanna have another kid. Zoloft for anxiety/depression. which helps except low d issues, so taking a D always.. who knowa if it helps.. Tizanidine muscle relaxer, Careful about taking this with certain meds tho. I take spironolactone too but for my acne and that helps me not get infections so often from my severeee cystic acne. also sleep training, waking with sunrise is actually helping so long as I give myself consistent 9 hours a night i think

November 24
A MyFibroTeam Member

Drugs lol Rest. yoga and make yourself move about if your tired despite not doing anything the previous day/week. Go to bed and wake up the same time everyday as best as possible, will prob take a while to get down-if able. Worth a try. Also Supplements and diet. you gotta know what supplements are worth the money. What will actually translate to fuel for your body.

November 24
A MyFibroTeam Member

I can relate to this too Lynnecarol, I live in a retirement scheme and just lately crippling symptoms keep me home alone most of time..get bad fatigue and by afternoons I'm struggling stay awake. Best wishes Carole

November 23
A MyFibroTeam Member

This is 2 back to back posts about narcolepsy with fibro diagnosis. Weird.

Chronic fatigue syndrome often gets diagnosed and/or diagnosed instead of Fibro

Also fighting pain, of any sort, but especially amount we do is tiring and full time job all its own.

November 23

Related content

View All

Does Anyone Have Narcolepsy?

A MyFibroTeam Member asked a question 💭
South Bend, IN

Hello Everyone, Has Anyone Found Anything That Might Help With Fatigue?

A MyFibroTeam Member asked a question 💭
Queensland

Ritalin And FibroFog

A MyFibroTeam Member asked a question 💭
Jefferson City, MO
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in