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Has Anybody Ever Had A Remission ?

A MyFibroTeam Member asked a question 💭
Cortland, NY

I once had a 2 year remission with just some small manageable symptoms where I was still able to work full time . They say fibromyalgia isn’t progressive that’s b.s. because it came back worse and spread through out my entire body .

January 24
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A MyFibroTeam Member

I've had Fibromyalgia since i was a teen in the 1970s. I wasn't diagnosed until I was 48. It began with menstrual problems. And IBS. I was extremely active. Skiing, snowmobiling, swimming, camping. I played softball until i was 40. So I figured when I hurt it was usually from some activity. But I always seemed to get "a touch of the flu" more often than my friends. The aching so severe that I'd have to spend the day in bed and then I'd be fine the next day. The migraines began in my 30s. I was working 8 to 10 hour. Days. But in my late 30s by the end of the day I'd be exhausted. I had to give up most of my activities. I knew something more was going on in my body, but doctors couldn't find anything. Then in 2003 I had breast cancer that included Chemo & radiation. In the spring & the summer. I was still working but had cut back to part time. That fall the pain became more intense & frequent. My doctor finally said I think you might have Fibromyalgia. At that time & for many years after many doctors thought Fibromyalgia was all in a womans mind. I looked up the symptoms & it was like a list of the problems I'd had. My fatigue & migraines were what made my decision to quit working until I got a handle on my migraines & this fibro thing. 🤣
That was in 2004. There was a new doctor who wanted to study Fibromyalgia. He would try all kinds of medication. I'd already had anaphylaxis 3 times from medications but thru him I learned that several medications don't work on me because of my metabolism. Since then I've learned about Pharmacokinetics, pharmadynamics, & pharmagenetics. In 2018 i had a DNA test to tell me which kinds of antidepressantsi could take. Its funny that the FDA is finally recognized this "new" DNA test that can tell if someone will be prone to drug addiction. Its all in a persons metabolism. And everyone is not the same. That is why certain drugs or even different manufacturersof a drug work for some but not others.
The question does it progress? My original doctortold me the breast cancer treatmenthad made mine worse.
Im a person with an extremely high pain tolerance. And I don't believe it goes into remission. I think that we just get more used to the pain after years and can push ourselves more.

January 24
A MyFibroTeam Member

I'm hearing you. I seem to be getting worst every year. Might just be age.???

January 24
A MyFibroTeam Member

I am so sorry you have so much to contend with as well as fibro Cherokee. The health police are as bad in Britain. Still too many people fiddling benefit for years and not found out, and too many people like yourself persecuted. Nice neighbours you have. I assume isolation is a big factor for you. Google Roaches, there are some simple practical ideas to stop these. In all honesty I’m not sure how but I hope things improve for you. Take care.

January 25 (edited)
A MyFibroTeam Member

There is no remission believe me I know. New things coming on me every single day. I'm in so much pain I could scream! It seems as if the landlords insurance companies and etc. has made it even worse. I keep an ice maker around because my knees and feet swell. One of the neighbors complained and when they complained when the new lease came out they said if they didn't put it in there you can't have it in your apartment even though the utilities are supposed to be paid. I had to have my doctor write a letter for me so I could have it in there. All utilities paid they advertise wrong! I had my doctor write a letter stating I am deaf so they came into the apartment above me to see if I was really deaf.Roaches big time all of a sudden I spray every day. I'm still on Medicaid for another year and a half and then I probably will get Medicare. Medicaid sends a company called signify into your home to examine you and they are really rude. I wanted so bad to tell that doctor to hit the door and don't come back. She told me I was going to have a heart attack and very rude with her mouth. I'm due another visit the first week of February and I told them when they called don't send her back. My bank I believe is ripping me off because Norton antivirus forced a payment on to an old debit card of mine and they deducted it. He even asked me are you still sick. Everyone seems to think I will get better but I have told them it is chronic. It seems as if everyone is attacking me at once. My eyes felt so bad yesterday I felt like I had two black eyes. My arms and legs hurt so bad. I felt a lump by. my right knee this morning.. The head pain and back pain is unbearable. The cold and moisture makes me hurt even worse. My eyesight is horrible. I mainly stay at home unless I have to go out. Sometimes having to cancel doctor appointments I am in so much pain. I was sitting inside of my apartment yesterday and my caregiver opened my curtains to check to see if the mailman was there in came the sun and immediately my eyes and head hurt so bad I couldn't stand it. He had to shut the curtains. I feel for you all but I know how it feels I. Walk in your shoes. I hope you all have a nice peaceful day. Love you all!

January 25
A MyFibroTeam Member

That’s so interesting elephant sorry you have been through so much. I would have thought being able to test for an addictive personality would be helpful. I have not heard much about this. Take care.

January 24

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