Describe What A Flare Up Is To You ?
We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more
Does Anyone Get Exhausted And Depressed After A Simple Outing?
Hi Everyone,
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
Hi yes , I feel like that also. God bless you with relief.
Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You
Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠
I get the sting pain also. My husband has severe neuropathy in his feet and gets these all the time. I also get these sensations like someone is touching me. I like to think it is a deceased loved on… read more
Does Anyone Else Get Tongue Tied And Get Words Mixed Up?
This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.
What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.
I have the same problem with this
Sweating
Does anyone sweat with there fibromyalgia not just at night but during the day as well?
Jessica, it's always hard being young and diagnosed. I had Gillian Barre at 23 and diagnosed at 31 in 2002. We feel the symptoms long before the diagnosis. I've had issues with sweating long as I can… read more
Finally, A Solution To My Pants!!! :) LOL
Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything around my… read more
Michelle that was amazing! You truly encompassed how I feel everyday. Thanks for that, you did well to concentrate for that long honey!🥰♥️. I'm so proud of you. Love Sam x
Full Time Employment And Fibro
just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
@A MyFibroTeam Member
This post is from 2015. So she probably won’t answer your comment🤗
Does Anyone Else Have Fatigue As Their Primary Symptom With Fibro?
I see lots of discussion and helpful suggestions about dealing with the pain of fibro, and I do appreciate those. However, for me the fatigue is the most debilitating part. Some days I wake up feeling decent, but just taking a shower wears me out and I need a nap.
I, m take lots of diet coke and an z to energy drink to fight to the fatique, but it never vanishes completely.
I Have Read That Depression Can Cause Pain. I Believe The Opposite Is True.
I believe pain can cause depression.
I belive that pain limits what you can do. With those limits comes self worth issues and can also cause isolation.
What are your thoughts on the subject?
After all WE are the EXPERTS !
Chronic pain can cause depression
Depression can cause physical pain
Both have been proven factually true in many years and many studies.
Stress as well
Trauma of course, too.
Weird it's still a… read more
How To Help A Friend With Chronic Illness
There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):
~ Don’t be afraid to hug her gently, but please no bear hugs
~ Understand that just because… read more
Everything you said is so true.