Manerix
Is this a British drug?
Nope we have it here in the US. Looked it up and it is used to treat Depression although here it is probably not used as much because it is a MAO Inhibitor and I know there are lots of issuesā¦ read more
Well, I Asked About Comedians/stand Ups, Now, How About Movie Recommendations? (I'll Do Shows Next Lol)
Hit me up with your fav movies. I'm mostly couch/bed bound and could use something to watch. I like just about everything except right now I don't think I can do foreign films I have to read nor ones I have to pay super close attention. Fibro fog , pain etc makes it kinda hard to watch something that requires me on edge of my seat following hard plot lines
Love just about everything else. Including rom coms , horror and probably an endless list of 80s /90s movies cuz that's the decades I grewā¦ read more
My favorite Halloween movie is Charlie Brown's Its the Great pumpkin. Looked at it growing up.
Light And Noise Sensitivity Are My Major Issues.
I wear my sun glasses most of the times. I wear ear plugs when it's possible. How do u manage noise sensitivity in social events, while shopping or in restaurants?
I understand! My husband always wants to dissect the movie after. Drives me crazy. I just need some downtime after moviešøš»
Sleep Study Reassurance? Treatment Options?
I'm being sent for one, new doc while my regular one - who wasn't helping anymore just pat on the head try mindfulness, prescribes whatever I asked for and get out of my office - he believes that the reason my antidepressants aren't working well enough and possibly other symptoms, could be related to sleep problems. I guess to sleep apnea.
I'm nervous about the study. I'm told it's easy and painless, so it isn't that. I am positive they are going to give me heck about the dogs sleeping with meā¦ read more
Clap has really helped with the fatigue. Still get up every 2-3 hours a night but able to fall back to sleep. I felt better . Had more energy. My family nudge me and tell me to put it on course I stopā¦ read more
Fingernails
Does anybody besides me have days when even your fingernails hurt??? š„ This was yesterday
Yes! The ridges developed as soon as fibromyalgia hit in my mid 30s after childbirth and after a car accident which was the trigger. Kills me that if you asked any doctor about nail ridges, they justā¦ read more
Brain Fog In Fibro Same Mechanism As In Covid?
I've been Intensely interested in the cognitive aspects of fibromyalgia.
The 1st problems I exhibited with fibromyalgia in my twenties were cognitive. Out of nowhere I went from having a didactic memory to having problems with concentration and memory and making decisions, as if I couldn't juggle complex information in the same way as before.
It has been wonderful to have a label for this cognitive condition and to be on this site where so many of us suffer from this because it helps me toā¦ read more
I've also noticed that some of the symptoms that long haulers are having are a lot like the ones we have everyday. I was really surprised hearing some of their symptoms
Treatments For Fibro In UK?
I have been taking 150mg serteraline and 20mg of amitriptyline for a while now and the only change I have seen is that I sleep slightly better than before. These pills are obviously not pain meds as I try to avoid them at all costs but its a real struggle when you can't move for days at a time
Can anyone being treated for fibromyalgia in the UK tell me what has helped them for the pain etc. I need to research before going to the doctor as they are not very clued up about fibro
Tia
P.s. I haveā¦ read more
Only useful comments please sharla. I take minimal medication I know a lot of people with fibromyalgia who are on 10+ types of medication
Anyone Find A Decent Way To Deal With Extreme Sensitivity To Sound, Lights, And Smells?
I get an instant headache and feel sick when something or someone has a certain scent. I can smell any non-sensitive/fragrance-free laundry detergent a mile away, perfumes, colognes... and don't get me started on air fresheners lol. I also get soooo dizzy from flashing lights and movie/tv show transitions, especially when the camera flips or things get sped up. Noises feel painful and cause irritability a lot too. Anyone else experience this, or find a helpful way to navigate? I feel like anā¦ read more
Every flare I've had results in photophobia (light sensitivity), blurry vision, sound sensitivity, also any chemical odor will make me really sick. I had a bad reaction to a leather conditioner a fewā¦ read more
Hydroxychloroquin
May not be fibro related but I saw my rheumatologist last Wednesday who started me on this medication and I just wondered if anyone else is on it?
Apparently it is an antimalarial drug but is given to people with autoimmune conditions as she feels I may have an autoimmune condition as well. It can take up to 4 months to work but since taking it my pain has increased throughout the day and was wondering if anyone had experience of this medication. She said it wasn't a pain killer so to continueā¦ read more
Thanks @A MyFibroTeam Member x
Has Anyone Gone On To Be Diagnosed With Parkinson Disease? Pls Share Your Story?
Iāve had a bad day. Had a couple of small seizures today where the top half of my body continually shakes back and forth
I canāt control it, canāt stop it but Iāve had what I call āmatrixā head where my head feels like everything moves like neo dodging machine gun fire. Left had is flickering all over the place and my head jerks side to side or back and forth or my upper torso jerks backwards. I get all emotional as I canāt control it. Makes me feel nauseous and completely exhausts me alongā¦ read more
Hi Kaz, I have had a diagnosis of Epilepsy since I was 18 months old and had brain surgery to stop the seizures 20 years ago. Recently i started having light seizures at night and after explainingā¦ read more