@A MyFibroTeam Member hope I did that right. I found out July 20 that the burning pain and sunburn, without sun, was actually systemic lupus. Waiting to see a rheumatologist currently getting steroid shots every six weeks.

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A MyFibro...

I have this all the time. It does feel like a vibration! Or maybe a buzzing (only internal). It's hard to describe unless you know what we're talking about. I haven't mentioned this to my doctor as I haven't been able to find the words that would describe it adequately. I also get insane twitches in my eyelids. So maddening, I'm sure everyone can see it, but usually not. I'm just a weirdo, I guess. :-)

I was told it was all in my head for so many years. In the late 90's I was diagnosed with Fibromyalgia. Had a wonderful Dr. At that time who explained it to me and told me what books to get at a medical library to read. I sat and cried when I realized others felt the same way I did. He saw me again in two weeks with a long appt. And went over everything with me. What a relief that was.

I have suffered with the eyebrows, eyelids and lip twitches for years before I was finally diagnosed with fibro, I felt like I was slowly loosing control of my face and never really mentioned them to the doctor as she already looked at me like I was some sort of nutcase taking up her valuable time with my complaints of constant pain and severe headaches, instead she told me it was just 'wear and tear' and maybe some exercise and a diet might be of help!!! then she just sent me away with pain killers and anti-depressants . It didn't help that as the rule was only one complaint can be discussed per doctors appointment, no symptoms were ever being put together to make sense and a lot of the time I just give up going back and just suffered in silence instead. I also get muscle spasms in my legs and my feet constantly seize up. As for the burning feeling,I suffer worst with my arms with this, I constantly feel like I'm next to an open fire.. It was my friend that finally suggested I had a load of the symptoms of chronic fatigue and encouraged me to go back to the doctors as by now I was in so much pain with my shoulders going up to my neck and into my head I could hardly move and my memory was so bad I was panicking I was developing dementia which I had watched my mother suffer with it and we had lost her the year before. Luckily I had my husband with me this time who basically refused to move until she did something or I'm sure I would still be waiting . She finally sent me for an MRI which thankfully showed no signs of dementia.and I had a different doctor when I got the results so was able to discuss symptoms and after I mentioned to him what my friend had told me about how all the symptoms matched he agreed that he thought I was suffering with chronic fatigue and also arranged physio. I then researched it more and found my symptoms were more inline with fibro so I went back to the doctors again and was then told by yet another doctor to discuss it with my physio!!. Thankfully she listened and went through everything with me and I was finally diagnosed. Looking back now at the time it took to get this diagnosis it must be at least 10 years, If only doctors would look at all the symptoms together and listen to us patients instead of making us feel its all in our heads maybe we wouldn't have to suffer so long and get the help we need and deserve sooner.. :(

I had these symptoms of twitching, vibrating and severe skin burning for 2 years. Initially when the buzzing/vibrating started i thought it was the base on the TV that was set too high causing the couch to vibrate. i also had muscle weakness and my thighs felt ropy almost like my thigh muscles were twisted. Pain and burning behind my knees, muscle burning (especially at night). Walking was difficult at times as my muscles just didn't feel normal. Any excercise left me exhausted. Just crouching down onto my haunches to dig in the garden left my legs shaky as if I'd been doing strenuous exercise.
I've also had very bad sinus and post nasal drip and at times dysphagia where it feels like something stays in my oesophagus when i swallow. have had endoscopy done which returned normal.
I also had odd sensitivity to pressure in several parts of my arms and chest. Just the slightest push was painful, especially in my upper arms.
The skin burning was severe mostly on my shins, ankles and thighs but at times around my mouth and on my face and arms. this symptom was very debilitating and distressing. At times it felt like severe sunburn and at other times like ice cold burning.
Went for so many blood tests and had Vitamin D deficiency which can apparently also cause skin burning.
supplementation did not relieve the symptoms.
Went for Cerebral Angiogram MRI which returned normal. Was put onto Lyrica which helped almost immediately for the odd sensations in my thighs but i cannot say stopping the Lyrica or being on it had any effect on the burning. Neurologist diagnosed fibromyalgia and been on 10mg lexamil since then. Was so worried about MND or MS or Peripheral Neuropathy but they were all ruled out thankfully. By the grace of God I have almost no symptoms now (started in 2013 and 95% improved in 2017) but at its worst was very debilitating and scary.
At times i have a flare up but nothing that lasts for days or months at a time as in the past.
God bless everyone of you that is suffering with this horrible condition.
One friend was in a wheelchair for 2 years due to the muscle weakness and he still battles with severe fatigue and overall body pain.