Anyone Have The FM/a Test Done?
Someone posted about a blood test for validation of fibromyalgia. Has anyone done this?
www.TheFMtest.com has information on it.
I'll be calling about it next week, but wondering if there is anyone that's already had it done and what they thought of the test and the results.
I had it done and it confirmed my diagnosis. I got a score of 77. I'll attach a pic of the results. From what I can find on line etc it seems to be getting more and more respected and trusted as time goes on. Very easy for doctors to say there is no blood test, and diagnosis is by exclusion only. Its new and people will always be scepticial. I found a study they done on line where they tested 250 people with fibro and 250 without it. They correctly diagnosed 93% of them. That's close enough for me! Given no blood test is absolutely 100% all the time.
I researched the FM/a test and decided against it. There's some red flags in my opinion, both in the methodology of it, and in the way it was brought to market. If it is as unreliable as i fear, think about it: What if you get a false negative? You really want to give your doctor another big reason to doubt you??? Some doctors are advising against this test right now. I'm taking a wait-and-see attitude. There was some good research that went into it, but i believe they rushed it to market before they proved the thing. Too much at stake for me to risk it. Your mileage might vary.
I inquired about the Fm/a just a couple weeks ago; the cost was completely covered by my Medicare insurance. It took 10 days to receive my results by mail, following the mailing of my blood sample to EpicGenetics in a prepaid overnight-return FedEx package (as they must receive the sample within 24 hours of blood draw) I only had to answer a few questions on their website in order to get approval for the blood test, as my primary Dr. was not willing to request the test for me (only because she did/does not believe that the test is accurate, nor that it exists).
As I was waiting for my results to arrive, I met with my Rheumatologist (only my second appointment with him) and shared the email that was sent to me by EpicGenetics (this was confirming my request for the Fm/a, and stating that they would be contacting my insurance provider to request payment for the test); he seemed rather stunned when I mentioned to him that my insurance covered 100% of the cost of the test (almost $800), and I was (at that time) awaiting the arrival of the test in the mail. After reiterateing our previous appointment (when I had asked about the possibility of having Fibromyalgia: he had told that I needed to seek a psychiatrist); it was rather nice to show him that this dis-ease is not 'in my head' (after showing him the email, I swore I was going to then fire him, but there aren't a lot of Rheumatologists in my area, and he does seem to genuinely care about me).
The Fm/a results are as follows:
a score of 0-49 is "Not Confirmable (-)",
a score of 50-80 is " Confirmable (+)",
a score of 81-90 is "Strongly Confirmable (++)", and a score of 91-100 is " Extremely Confirmable (+++)".
The value of a blood test is that when you're at the disability level like I am, you have "evidence" that it's not your imagination. Fibromyalgia disability is extremely difficult because there is no evidence, so they send you for a psychological exam instead.
Those of us who have been suffering for decades aren't doubting that I have it, but get really tired of hearing it's all in our head.
Plus if they can finally identity it through a blood test, then there is finally hope that more research could bring us relief or possibly a cure
The fm/a test is not just a genetics test, go check it out fm/a test.com, they measure your cytokines and chemokines in the blood to determine you dx. They believe this is going to end up being a disorder of the immune system. From everything they say it makes a lot of sense in my case. The fact that insurance companies including Medicare are confident enough in the test to pay for it gives me great hope. But I absolutely agree fibro can be caused by a number of different things. stress, trauma, injury, surgery, etc.. ect... can cause immune system to go into that fight or flight mode, thus causing problems. I am pretty sure they will be testing and learning the genetics aspect as well too. Sounds to me that these people may actually figure all this nasty disease out. I am praying it works out as well as it sounds like it is going to.
Is Cannibus Helping Your Fibromyalgia Symptoms?
Has Anyone Had Experience With Buspar?
Has Anyone Heard Of The Blood Test FM/a?