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Any Of You Able To Claim Disability For Your Fibro?

A MyFibroTeam Member asked a question 💭
Redmond, OR

I will be turning 22 this November but my Fibro makes me wish I could retire already. I find it harder and hard to wake up each morning, to even get out of bed is a battle. If anyone out there is able to claim Disability, I would like to know if it truly helps your day to day life in comparasin to working every day? Do you also have a part-time job? How do your loved ones react to this life change?

Please and thank you!
God bless.

October 15, 2015
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A MyFibroTeam Member

I was awarded physical independence payment or pip 4 short, this is taking over from dla i was one of the lucky ones that got awarded first time, i took my time filling in the form explaining exactly what i couldnt do myself (which is most things) i also backed it up with relevant agencies my gp, rheumatologist, pain clinic , physio and phyciatrist whom i was involved with. I have heard on another forum alot of people has had numerous attempts some get it others don't. I find it hard not being able 2 work as my husband is disabled so i was the only one that could work. I worked from age 16-40 then doctor signed me off that was 31/2 years ago i still hope that i will be able 2 work again just hve 2 take one day at a time. Since i've stopped working i hve got less and less mobile which is really frustrating i give myself 2 much of a hard time. When i did work i would come straighe home 2 bed no food no family time which frustrated me even more. I have literally cut myself off except 2 family now which isnt good 4 anyone so plz try 2 stay in contact with colleagues and friends that y can rely on. Gentle hugs x

October 17, 2015
A MyFibroTeam Member

It does take a while to get on their going to deny you the first time I would get a lawyer from the jump and if you have a lot of documents from your doctor's office it helps the process. when in November is your birthday my daughters birthday is November 11th and mine is the 23rd. I wish you luck in everything you do and hope it turns out the best.

October 15, 2015
A MyFibroTeam Member

Oh, you are so young! I am so sorry that your life is this way.

February 19, 2018
A MyFibroTeam Member

I did among other health issues and it was noted.for fibro it took about nine months and I did have an att...

October 16, 2015
A MyFibroTeam Member

I'm on disability. I tried filing myself with Social Security. I got nowhere. I went with Binder & Binder (attorneys) and they got all of my medical records and fought for me. I didn't pay anything until they won my case. Then they got a percentage of my settlement. My advice to you is get a good attorney that specializes in disability. Make sure you have everything documented from doctors. Filing for disability at 22 may be a challenge. If you have everything documented from doctors and a good attorney will definitely help you.

Being on disability and having fibromyalgia has definitely changed my life. It's hard to deal with not being able to do what you used to do. Social Security disability leaves you little money to live on. I think it's important to do what you love doing. Anything that makes you happy I would go for it! I think it's important to talk to someone like a counselor or someone to confide in. Anytime you have a chronic condition it's hard to deal with mentally.

I also am a caregiver to my husband. He's on disability due to complications from diabetes. It's been a real challenge trying to take care of myself and him.

I would rather be working anytime versus being on disability. I miss people, I miss getting out. When you're home all the time it gets old. I try and have somewhat of a routine. That helps.

How did my husband react to be having fibromyalgia. Well, I first got diagnosed with fibromyalgia. Then later I was diagnosed with rheumatoid arthritis. I was working at Wal-mart as a cashier. I was exhausted all the time and in pain all the time. I suspected fibromyalgia and later it was confirmed. He still expected me to carry on like I've always done but that wasn't possible. I don't think he knew how to handle it.

Get a good support system like this group. Family often won't understand or know how to deal with your chronic illness.

I hope this helps.

October 16, 2015

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