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Difference Of People

A MyFibroTeam Member asked a question 💭
Atlanta, MO

I understand that people handle fibromyalgia differently but I have two friends that has fibromyalgia and they can do anything and everything and plus they are older than me. But yet I can barely walk and do anything without pain. I don't get it can anyone explain this to me?

March 24, 2016
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Answer Summary

Members connected deeply over the question of why some people with fibromyalgia seem to manage well while others struggle with severe pain and... Read more

Members connected deeply over the question of why some people with fibromyalgia seem to manage well while others struggle with severe pain and mobility issues, with the overwhelming consensus being that fibromyalgia affects everyone differently in severity, symptoms, and pain tolerance. Several members shared their experiences of using canes or motorized carts after initially feeling embarrassed, learning to prioritize safety over pride, and facing judgment from family members or strangers who don't understand invisible illness. A recurring theme was the importance of self-compassion and community support, with members emphasizing that comparing ourselves to others is unfair when everyone's body responds differently, and that finding understanding people while weeding out judgmental ones is essential to managing chronic illness.

A MyFibroTeam Member

I said the exact thing, you couldn't pay me enough to buy any of my pills, not even just my narcotics any of them i need every pill im on! And your right its people like that who are giving the people who really need pain pills are hard time getting them because they have given everyone a bad name i couldn't stand going to a pain center, im so thankful that my doctor now also does pain management in her office as well but you have to be one of her regular patients to get the pain management and she calls you in for a regular pill count, she counts your pills at every appointment, and test you to make sure you have the right levels of meds in you to make sure your the one taking them so you don't see none of that crazy stuff going on in her office, but when i first was diagnosed with fibromyalgia i read alot on it and have studied it since day one so i am educated a good bit ,but fibro is one of them that can throw you curve balls sometimes, and even though i do know alot about fibromyalgia i still like to ask questions and read other people's stories because like you said it's still comforting knowing your not alone.

March 24, 2016
A MyFibroTeam Member

It's people like the ones you described that are making it more difficult for those who need pain meds to get them! My husband and I were talking about this after picking up our meds and how much they were worth on the street. We both say that that's how we know we're in real pain because you can't pay me enough to buy my pills. Because I need them.

One of the reasons I like this site so much is I read all the symptoms that others have and realize I'm not crazy. I'm not alone. Others hurt and live just like me. As sad as that is..... I don't know about other people who don't seem to hurt like I do. Maybe their symptoms are mild. Or maybe they are severe and I just don't see them when they are flaring. Nothing about this stupid fibro is fair.

March 24, 2016
A MyFibroTeam Member

Everyone's journey with fibromyalgia is different. Just like the pain we experience is different. I'm pretty sure that if you got 20 people suffering from fibromyalgia in a room together, they would all have different symptoms and be on different medications. That's the joy of fibromyalgia and also the difficulty for doctor's to diagnose it 😒

July 28, 2024
A MyFibroTeam Member

Fibro1 I fall a lot and most of them are tumbles, one was pretty bad. I had my cane to. I use a hurry cane and they are great. Better balance with that than any other cane.

March 27, 2016
A MyFibroTeam Member

I guess I am on the other side. I am pretty active for a fibro person. I work a full time job. I keep up most of the house. I take care of the pets and do the shopping. But I always make sure I come home and relax. I take lot of baths. I always try to find little ways to make days more doable. Before I had fibro though my pain tolerance was absolutely through the roof and I have always been very driven. I fear the day I need a can because I know it's coming. It's not fair that other people with fibro tell you that though I am sorry they don't support you

March 25, 2016

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