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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Lyme Disease

A MyFibroTeam Member asked a question 💭
Cheshire UK

My dad is pressuring me to have a test for Lyme disease he thinks the symptoms are similar and years ago I had a bite from something.

November 5, 2015
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A MyFibroTeam Member

Actually most people who have lime disease get false NEGATIVES. There is a test, can't think of the name, that tests for the specific virus that causes lime, it tests how much of it is in your blood. It's different than the usual test. Treatment for lime is different because it's an antiviral medication that sometimes has to be taken for years.

November 10, 2015
A MyFibroTeam Member

Yes the symptoms are very similar to Lyme disease. I actually asked my rheumatologist if I could be tested for Lyme disease ,but she said there would be no point in testing me as apparently about 90percent of the population would test positive for having had contact with Lyme disease and she said that it would make no difference to my treatment.As well as fibromyalgia i also have arthritis which I have read can also be caused by Lyme disease. Although I do not recall being bitten by a tick ,I have had other insect bites some quite bad plus I live right near a deer park that we used to play in when we were little and were unaware of Lyme disease so never took any precautions like wearing long trousers etc. I would still be interested to know whether or not I have had contact with Lyme disease.

November 5, 2015
A MyFibroTeam Member

I absolutely agree with your dad. The symptoms are very similar, just like fibro Lyme disease is different in every person. I've had a couple of family members being diagnosed with it and they all had different symptoms. I even took the test myself to rule it out. I was hoping it was Lyme, you can treat it with antibiotics.

November 6, 2015
A MyFibroTeam Member

Yes. Lots of tests are false negatives. Google jadin protocol

May 11, 2018
A MyFibroTeam Member

I just had a western blot done and found out it was positive. Both Elisa tests were negative. Found this out after 2 years of fibro.

June 19, 2016

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