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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have Any Of You Had Bladder And Urine Issues?

A MyFibroTeam Member asked a question 💭
Harrisburg, PA

Ok, this is embarrassing, I have had this problem for a long time. It started many years ago. I would not be able to hold my urine so I started wearing feminine pads in my underwear and then it just got worse and now I have to wear the Always pull ups :( I have done the Kegal exercises ect to no avail.

I do know I have a spastic bladder but this is just ridicules and very embarrassing,In fact its the first time I have told anyone. I mean it happens when I have my seizures but that is a… read more

February 8, 2016
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A MyFibroTeam Member

Your not alone, I'm 38 and have urine incontinence issues, iv had 3 virginal opps, all to correct pelvic organ prolaps, first was uritha prolaps into my vigina, second was bowl prolaps into my vigina then a year later virginal hysterectomy, I'm 5 years post opp now and still having issues, yes I use incontinence products xxx

February 9, 2016
A MyFibroTeam Member

Yes, since injuries from car accident yrs ago. I wear pads always. My bladder leaks at odds times throughout day. Mostly after a when to bathroom like a few min after I wipe, sitting on toilet extra long doesn't help. It's when I'm standing and walking. Sometimes I feel as I need to pee constantly. And nothing come out. Embarresing to talk about for sure!

February 8, 2016
A MyFibroTeam Member

I also have to concentrate to urinate! I gently massage my back to help or read. People think I'm nuts.

February 9, 2016
A MyFibroTeam Member

Is there anyone new - under 7 years ago- struggling with this issue. This is totally me!
Not sure if it relates but i also lost interest in sex. Sad for my husband. But after tries with pain, im not even interested in trying anymore!

June 27, 2023
A MyFibroTeam Member

I also have this problem and have to use Depends, it is very embarrasing for me too. I also have seizures like use that causes loss of bladder.

May 17, 2016

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