The first visit is a consult. They will have looked at your medical records, then they just want to hear from you what happened and how you feel, etc. Very patients centered. Then, at least in my case, I was sent downstairs to their lab for about 10 labs and blood to be drawn.

You go home and wait. It takes about 3 weeks for the labs to be done. Then they'll send you the results via your online account, and you can set up a time for a call to discuss them. Then is necessary, as in my case, they prescribe an anti viral pill by calling it straight into the pharmacy. They work with your PCP, but generally you work directly w them by phone, and have a 6 month follow up appt.

The tests that Stanford runs and the treatment it provides is very specialized. As we all know, fibro still has a stigma attached to it. But there ARE doctors and scientists out there who take this illness very seriously, and consider it a disease. You just have to really, really hunt and research to find them.

The 1st thing I remember ever saying was "I feel like I have the flu 24 hrs a day 7 days a week "
So that would all make sense! Why can't they fix us? LOL if only it were that easy right?

Normally you need to get your PCP to refer you for a consult at Stanford. Most doctors don't know what to look for and can't prescribe the treatment themselves --I asked around and they all said I had to go to Stanford. Here's the website:http://med.stanford.edu/chronicfatiguesyndrome....

@A MyFibroTeam Member thank you so much for this information, it goes hand in hand with the book Medical Medium that I've been working off of. It's great to hear that other places are looking into the same thing.

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