I have it too, and notice it is worse when I am in a flare! I play a cd by Kenny G when I am trying to get to sleep, or Yanni to block it out sometimes I go to sleep before it stop playing

I think we all feel the same way. I lost virtually all my 'friends' over the past year. The A & D took over so I let the real me out and sure enough people don't like being around when we show our pain and feelings. So I'm back to crying in private again too.
As for the 'friends', I'm glad as I learnt that they weren't true friends when it came down to it.

That's why I love it on here so much. We can be truly open and honest. We share our pain but we also share our laughter. I like to think that we could all meet up for an international convention (would take weeks to allow for bad days lol). Can you imagine the sarcastic comments we all make flying around the room. Oh and the tears of laughter, and the hugs! Oops I'm off dreaming again 😂
Seriously though, I/we completely understand and are always here to listen. Gentle hugs xx

Humor and sarcasm (the friendly type) are two of my best coping mechanisms. It's either laugh or cry, and no one wants to be around a whiny person for long. People know I am in pain almost constantly and I just tell them as long as I have my sense of humor, don't worry about me. What they don't witness are my most painful bouts and my crying jags or how miserable I really am. I hate this life, I hate living with the facade I feel necessary in public, and I hate when my optimism disappears. I especially hate what this disease is doing to me as a person and how badly it has affected my life. I have no life any more, I feel it is just surviving. But, . . . . . tomorrow I will put on my 'happy face' and somehow muddle through another day.

Tell your daughter to ask for a doppler scan n her neck. That may give some answers. X

I have had terrible tinnitus for years. Meds never made it any worse. I dont take any meds at the mo. My tinnitus gets worse when I feel rubbish. Im waiting for a doppler scan on my cartoid artery to see if this is the cause of the tinnitus and pressure in my head. Hope you get some relief soon. X