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Has Any Sufferer Of Fibromyalgia And CFS Receive The PIP Welfare Benefit In The UK

A MyFibroTeam Member asked a question 💭
London, UK

Personal Independence Payment (PIP) is a benefit for people aged between 16 and 64 who because of a long-term illness or disability may need help with daily activities or getting around. PIP has replaced Disability Living Allowance for anyone making a new claim.2 Jun 2015

June 23, 2016
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A MyFibroTeam Member

This sounds great and I will check it out as soon as I'm finished expressing my gratitude to you.
A big THANK YOU Jayfysh as I'm floundering and apparently the government asked the PIP decision makers to read and understand Fibromyalgia & CFS illnesses and the effects but seems as if the suggestion is being ignored.... Ta

June 25, 2016
A MyFibroTeam Member

I recommend this website to everyone when I see a question regarding UK benefited system
www.benefitsandworks.co.uk

They are a subscription site of £16 a year. This covers the costs to employ people to keep on top of the different benefits and law changes so that members can make the best claim available to each person in relation to their disabilities

They walk you through each question on the form and advise you how to answer the question to maximise your points score. They make you think of aspects of you disability that you have had to adapt your lifestyle because of that you now probably take as the 'new normal' and wouldn't think would 'matter' but could lose you points by not including.
There is also a members forum where you ask questions in relation to your individual circumstances to a particular question

I have used it for both my ESA and DLA claims successfully ( both received without medicals- DLA was a lifetime award middle rate care high rate mobility tho PIP negates that because of new rules and will have to apply with changeover when they contact me)
My daughter who also used there help to claim as well successfully with no medical for middle rate care

They also advise on how to handle assessments, considerations and appeals

The main Fibromyalgis information sites in UK also highly recommend them and I know some support groups use the site to help their members as a collective where they all use the one membership subscription

Hope this helps xx

June 25, 2016
A MyFibroTeam Member

Hi Aflgray, I am sorry tht you are having this trouble on top of having to live daily with pain etc My advice would be never to go to Asos or an interview because they assume that if you are well enough to get there and wait you are not ill. I really am not up to getting to an interview and I rarely get out at all; I got Asos to come to my home

June 24, 2016
A MyFibroTeam Member

My carers all had pre-booked appointments and a friend promised to go with me, she came and took me then said that she had an emergency and left me there, she did say that she would try to collect me to take me back home. I'm "appealing" as all Fibromyalgia and Chronic Fatigue sufferers know that having this illness is debilitating and difficult to fit into those boxes/categories that the benefit people come up with

June 24, 2016
A MyFibroTeam Member

That's wonderful to hear as I was refused and now asking for mandatory reconsideration.
I visited Atos centre, waited for 70mins to be seen, very uncomfortable chairs, the assessor was awful and a liar and I said that based on what was stated in my refusal letter

June 24, 2016

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