Deterioration
Hi everyone I hope you have all had a good day. I have only recently be diagnosed although the more I read I have had symptoms since the birth of my 4th child 4 years ago. It's only in the last 6 months that things have stepped up slightly. I have been on anti depressants for nearly 2yrs since my marriage ended. Which I now think have slightly masked some symptoms. So my question is basically are things going to get worse? X
I've had this for decades since my third child was 3 and in my experience it is cyclical. Sometimes better and sometimes worse. Your anti depressants are probably helping a bit. You need to look for your triggers. The things you do that make it worse like gardening, cleaning the house etc.
Remember that you pay in pain for everything you do. So try to work in spurts and rest in between this will help. Spread out the chores - if you can have someone help you do it. Don't be afraid to ask for help.
If you have to do it yourself - do the stuff that is hardest first stop by lunch. Spend an hour or so with your feet up and rest. I was a gourmet cook with the crock pot or one pan dinners in the oven. simple is better and no one complains as long as there is something to eat. Many grocery stores deliver so go on line and order - one less physical activity to deal with by you. If you can a cleaning woman once a week or every other week is a godsend
Oh yeah,it will definately get worse. You will develop more auto immune diseases,among who knows what else. You lose your strength & abilities you have come to take for granted as "you". You will get more & more often pain. More more abilities. This can rot your teeth,lower or block ability to absolve nutrients,etc,suffer anemias,lack of B12,iron,mental fog/dementia,a pharoah,treated as a faker,resented by family & friends coz you can no longer take care of yourself & your life & family,never mind be first in the scene when help is needed. Or usually,by family & inlaes,expected & demanded as their right to have us keep it all together & all the work that is beneath all of them.The pain & limitations are hell,but the stress & waste of time trying to get the understanding,let alone left alone to rest & someone take care of you,is frustrating & stressful. & this is always worse from those closest we shouldn't have to explain to. It's usually hell on relationships or marriages. I hope like heck you have a true support system,coz this makes a HUGE difference.If not,the sooner you learn to say no& cut the "doubters"out of your life,the better. Coz this is a lifelong roller coaster ride!
Hi I'm sorry to hear what's happened but I find at first it helps to keep a diary of what you have done eating sleeping and other day to day things you then can see a paten of when you need extra sleep and when you're better to do things when your pain is bad and if you get fibro fog then you got it on paper to tell your doctor or any one else I also find it better to use the spoons method u have 10spoons and every time you do something u use a spoon when they have gone then that's it u do nothing so it makes you do what you need to do and nothing else so u have to priorities what you need to do it helps give your self a rest in-between every thing u do good luck hugs x
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