@A MyFibroTeam Member I also lost my children due to illness Fibro and PTSD pretty much wiped the floor with me in 2013 and I needed help. I agreed to respite but I never got them back as they claimed I couldn't look after them. As if this bloody illness isn't hard enough I now have to live with the daily challenge of missing my children and with that brings Sadness, shame, a feeling of guilt for not being strong enough, feeling like a failure and a sense of grieving all = stress and low mood.
NO ONE can be harder on me than I am but I truly believe I am putting them first and making sure they have a childhood and not have to look after me. It's a selfless act hun and if people can't see that than F**k them.
My next door neighbours told most people I was a drunk, and that just made me laugh because I am no drunk if I was a drinker I'd be dead with my liver. I put the story straight and told my neighbours to mind their own.
You can't help having this chronic illness so let no one put you down, stay strong and know your not alone :)

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A MyFibro...

Staying I have the Morgan freeman disease actually sparks interest. Using a big name and stating he is going throu is seems to help with awareness

I have had this illness for many years. Back when I was diagnosed no one believed it was a true illness and even the medical community did not always believe it. Thankfully things have changed and there are doctors that can provide treatment and medication and treatments that can help those of us who suffer. I think people don't believe in our pain because it is not something that can be seen. My advice is to take the best care of yourself that you can. Don't share your story unless you trust the person or they need to know. I have family and co-workers who do not believe that this illness is real. That's okay as I know it is and I do the best I can to take care of myself. More and more the stigma of Firbromyalgia is not as strong as it used to be. I wish you the best and hope you can find peace within that you did not cause this disease and did nothing to end up having it-just like the rest of us. You really are brave to face this alone and to lose your child. Cindy1310 is right because even if everyone we met did believe us, it would not stop any of the pain and other symptoms we deal with every day silently on our own. Sending you loving thoughts and gentle hugs today.

I think a lot of people have problems with this because they can't see anything wrong. I agree with Cindy1310, that was a very brave & unselfish thing you did for your child. Hang in there. Keep your chin up!

Can't believe we have to go through all the extra unneeded stress :/ and I think we all know where stress leads to !!