I feel horrible,especially if you are talking to someone and you forget what words go in that sentence.😮I don't go to family function like before due to me being in pain all the time that makes me want to have my own quite place. Noise is not good.Not forgetting the question "how are you?"and "whats wrong with you?".😲like me trying to explain fibromyalgia is going to help.......it is too much to handle the light,noise,people the cold and comfort. If have to go through a event with my family i keep it short and sweet.What can a fibro person do?Just smile and wait to go back to your comfortable area."my alone place "🤗

Hi there fellow brothers and sisters with this horrid decease, FM and many others life robbing, crippling
monsters in us and taking away almost everything, yes even your social life you use to know and enjoy. Gone
Your friends and family (sometimes) Gone or distanced. You become somewhat of a parked at home hermit... some, not all.
I think (this was brought up in the body of replies). (crowed spaces) stuff
I talked with my wife about it to make sure it wasn't me being over sensitive or got it wrong.
"An evening out with one of us" Sick

"Our people" out there, they are collateral damaged souls pulled into this "btw I'm really sick" thing by us.
Can you, healthy person image sitting next to a close, dear friend, maybe a few more people too, restaurant maybe and you know James is at a pain level of 8 or 9 and trying to engage, laugh at the jokes and last the night out so that someone could see him out once in a while. I'd feel as uncomfortable as hell. And, hate to say it but would not be able to hide my emotions and open my heart out but sadly show pity for my best friend. That's the last thing WE want.
"Let's do this again next week" Not.
The thing is, you really know who said that they were your friend because they don't change a bit. In fact some jump in the deep end of the pool with you to help anyway they can.
Those are my rocks! My wife, what a stud to go through this with me. Where is that guy..
I isolate myself sometimes at home too, not so much anymore.
When Kerry and I talked, we agreed we don't want the-
(What happened to the Tim and Joy)
So we go and face that occasion with as much gusto and determination and have as normal as a night I can.
I'm not ready to tap out for a long time.
I pray for you all.
Terry

I find crowds make me confused and I can't function, even if I'm driving to some place different it just freaks me out. This has been getting worse and I use to love to drive, didn't matter where.

Yes🤔.i do feel that it's too much work.😣Then you have to go on to explain what you are suffering from and the meaning and pain and the reason why you are not able to complete your career and the reason why you can not work anymore😶.So Yes i stay away....i don't like the idea of me not being able to relax and be comfortable. I won't allow these negative people stress me. Avoid noisy crowd.😤 We are Fibromyalgia people,and if they don't understand it then they can bugger off😝......haha😁

Fortunately for me, I do not suffer from anxiety often. I am free to mingle as my energy allows.There are some people that have a very therapeutic effect on me. My mood is usually flat or depressed, but a few can actually get me to silly and/or smiling.