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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Suffer With Jolts During Sleep And Head Shaking Whilst Sat Up Awake?

A MyFibroTeam Member asked a question πŸ’­
Weston-super-Mare

Over the past few months I have been experiencing head tremors, like gentle nodding that I can't control. To stop it I have to support my head back onto the sofa. It doesn't happen every day but prob 3 times a week.

The other issue is restless legs and my body jolting when I'm asleep. I've actually woke up my husband and now im worrying as its happening more often than not. I would appreciate any advice to help settle my worries. Im jumping to conclusions like 'is this the start of MS on top… read more

August 15, 2017
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A MyFibroTeam Member

My legs jerk in my sleep. Sometimes it wakes me up they jerk so hard. Restless leg syndrome is part of FIBRO.

August 15, 2017
A MyFibroTeam Member

Thank you @A MyFibroTeam Member, thats very interesting, as my husband is waiting to see sleep apnea clinic. I will mention this to my doctor. Its funny you've said that because I have apparently just started snoring quite loud! X Take care have a nice day. X

August 17, 2017
A MyFibroTeam Member

I have restless leg syndrome. From what I understand it is normal with fibro. I often find it hard to get comfy or wake up and my blankets are everywhere. I get the body teitches but only when I am awake.

August 16, 2017
A MyFibroTeam Member

@ Yes I get this as well but my whole body, not just a leg or arm I do get woke from them quite often and find that it is happening more frequently. It refers to sudden, involuntary jerking of a muscle or group of muscles. Myoclonic twitches or jerks usually are caused by sudden muscle contractions, called positive myoclonus, or by muscle relaxation, called negative myoclonus. Myoclonic jerks may occur alone or in sequence, in a pattern or without pattern. They may occur infrequently or many times each minute. Myoclonus sometimes occurs in response to an external event or when a person attempts to make a movement. The twitching cannot be controlled by the person experiencing it.

August 15, 2017
A MyFibroTeam Member

I have involuntary movements too, my doctor said it's nothing to worry about and just normal with fibromyalgia. I'm not on meds so I doubt it's a side effect.

August 15, 2017

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