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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Any Else Suffer From A Severe Folate Deficiency?

A MyFibroTeam Member asked a question 💭
Liverpool, UK

I have done for about 3 years now and it makes everything feel so much worse. I eat lots of green veg that’s folate rich, I started out on folic acid tablets which didn’t improve anything despite going up to quadruple the dose, and now I have to use injections of folate. I’ve had endoscopy and gastroscopy and all that shows is I have a malabsorption problem. Initially, the injections made my folate rise and I felt so much better but now it’s suddenly dropped through the floor again, despite… read more

November 17, 2017
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A MyFibroTeam Member

I can't take them, I have a defective gene. My gp says there are so many people. So I went to a natural path, they tablet have helped lot. Not so tired.

December 18, 2017
A MyFibroTeam Member

Yes I have I can't digest folic acid. You could have other issues. I got diagnosed with a defected gene MTHR. Get your doc to check it out. It costs lots of money unless you have a family member that has that issue. I now have the correct tablet b so I feel so much better. It is worth while to find out. I was always getting sick eating the folic acid food. As I don't have the enzyme I can't digest them. Good luck with finding the answer

November 29, 2017
A MyFibroTeam Member

Yes at 52, and fybo for last 8yrs, not to my knowledge that blood result for folate has been so low. It takes so long to get up on a morning, joints ache and lathargic, the smallest tasks absolutely sap what small amount energy left. Feeling dwn not much fun when you need help with cleaning the house shopping ect losing my independence slowly.

July 28, 2020
A MyFibroTeam Member

That’s really helpful to know as I could sleep constantly, even though it’s disturbed sleep as I’m sure we all suffer from. It’s also making all my fibro symptoms feel even worse because so many are similar to each other so it’s like having a double whammy plus I can’t do the slightest thing without getting breathless, which is horrible. Thanks loads for your help x

December 18, 2017
A MyFibroTeam Member

Asked my gp about it and all she said was it’s not worth trying anything as your body just won’t absorb it and there’s nothing else they can do! I know that’s not the case but they’ve just written it off as such! Would change gp’s but it means starting all over again from the beginning and don’t know whether I could cope with that either :(

November 29, 2017

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