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Do You All Think Dizziness Is A Symptom Of Fibromyalgia?

A MyFibroTeam Member asked a question 💭
Grand Rapids, MI

I have been struggling with Vertigo for a year and a half. And the past 5 months I have had it all day long. I have seen a ENT, neurologist, a balance center DR and none of them could figure out what is causing my dizziness. I went off all medications for a month and nothing changed. I thought maybe my medications were causing the dizziness but I guess not.

January 19, 2018
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A MyFibroTeam Member

I had chronic subjective dizziness (felt out of balance, light headed). People with vertigo feel as though they are actually spinning or moving, or that the world is spinning around them. I am not sure which one you are referring to. I had dizziness for 4 years, it was terrible. I improved very, very slowly and no doctor could help me. I constantly felt disoriented, like the floor is moving under my feet or that I can faint anytime. Dr. Jeffrey P. Staab MD (Rochester, Minnesota) is doing research regarding dizziness/vertigo problems, you may want to read about his findings or treatment recommendations.
I was taking Citalopram (SSRI) based on Dr. Staab findings, however I was unable to take the recommended effective dose because of the side effects, so it did not help me.
I started to do vestibular exercises on my own to help my progress. I am now 90% recovered.

January 19, 2018
A MyFibroTeam Member

Hi there!

I had to go off work from the dizziness, shakes, weakness. I didn’t have vertigo where everything was spinning but I get weak and dizzy. I too went to ENT, Dizziness Centre (not my favourite that’s for sure) and neurologist. I was taken off meds and still nothing. I get PEM - post exertion malaise, dizziness- but more like my blood pressure is dropping (which is does more times than not) and I shake. Is yours similar?

January 19, 2018
A MyFibroTeam Member

I'm so sorry. I experienced vertigo for the first time about 3 years ago and have had it intermittently since then. It's horrible. Have you tried the Epley maneuver? Some people with BPPV have success with that.

January 19, 2018
A MyFibroTeam Member

My heart and blood pressure are great. I have had a couple of different EKGs done and the doctors both told me I have a good strong heart. The ENT said I have vestibular vertigo but I didn’t have headaches for the first year of being dizzy. I didn’t get my first migraine until 5 months ago. Then I had migraines every weekend and some weekdays. I believe it was due to a medication. I don’t understand how I can have migrainous vertigo if I didn’t ever have migraines before that. I suffered from those headaches and migraines. Until I went off all of my medications. I am currently trying to take just Cymbalta and see if it will help with my Vertigo and fibromyalgia symptoms. I hope your condition gets better. It’s frustrating to have dizziness.

January 19, 2018
A MyFibroTeam Member

Hi, Check out PoTS. It is a symptom that is strongly related with fibro and gives symptoms of vertigo, tachycardia, nausea, painful chest and shoulders, etc., etc. I have been taking Ginko Billoba for it as it is supposed to be 30x stronger than the pharmaceutical Serc for this disorder. Check it out online and best of luck as though Ginko does help me, I have found that PoTS symptoms seem to come back at least every few months.

December 3, 2022

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