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Help...whats Fibro & What Isn't?

A MyFibroTeam Member asked a question 💭
Plymouth, UK

I was diagnosed in 2012, & though i was managing thw best i could. Since miscarrying in 2015, i have various symptoms. Thought i was going mad, as docters kept saying all test are good
I have/am experiencing immense head pressure, numbness or/& pins & needles in face, achy itchy ears, burny achy eyes.
On top of that, a lump discovered above my breast which have been sore for a long time. Today docter thinks its non cancerous, but muscular.

Does anyone else experience any of the above & have… read more

February 28, 2018
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A MyFibroTeam Member

I get the intense head pressure/pain & Im taking nortriptyline for that and it has helped a lot. I've also had numbness usually in my feet, legs, or my hands & have burning eyes, usually when the head pressure would get bad. I've had so many strange symptoms. Once my brain felt like it was being squeezed and recently I've been having internal tremors/shaking in the back of my head, neck, & back.

February 28, 2018
A MyFibroTeam Member

Devonlady, I too occasionally get the burning feeling on top of head, I've told my specialist when I go to brush my hair back out of my face it feels like someone is yanking the hair out of my scalp. I've also had the burning sensation on top of my hands and feet. This past summer while attending my Uncles funeral at the gravesite on a beautiful hot sunny day. My one leg felt as though it was on fire. Embarrassing when you have to walk away and look for shade. Again a month ago it happened with just a small amount of a535.
As for my ears, the same! Ear aches or a feeling of blockage. Ringing in my ears. Have seen a specialist twice. She said either something to be done with my jaw a message therapist or dentist. I refuse to have my jaw broke or massage. Heard it is very uncomfortable. And who's to say that is the cause.
The lighting at work brang on I believe the vertigo symptoms, dizziness, light headed.
Had the stabbing and thought maybe I had shingles again. But never had it checked. Okay I could go on but afraid you's may block me lol. Hope this info helps. 🤗 Comforting hugs to all.

March 1, 2018
A MyFibroTeam Member

Hi devonlady
I get the sharp stabbing pains too. Stops me in feet completely for about 30 seconds. Unfortunately not got to bottom of it. Have heard a friend say she experiences (non fibro) & hers is explained by nerves pressing on the skull. I had been finally reassured by a gp that they will chip away at each sympton to find aliminate, possible cause & treat. Keeping my fingers crossed. Hope your keeping warm in this freezing weather. Hugs

March 1, 2018
A MyFibroTeam Member

Hi there, I have pressure many times on my head around my head best described as wearing a helmet or tight cap. Along with symptoms of vertigo. I'm a new member and just reading some of the questions I can recall years ago the numbness in my face. Was tested but nothing showed. I assumed it had something to do with my sleep apnea. Also wondered if it had to do with my RNY surgery. 🤷🏻‍♀️I guess I'll never really know. Hope this helps you in some little way. So sorry to hear of your miscarriage. ❤️

March 1, 2018
A MyFibroTeam Member

Me too i get the internal tremors and strange burning and pain in top of head on one side also terrible burning eyes that its hard to see ,i also get the dead or tingling arms and legs and so dizzy i bump into things ,ringing ears and earache ,jaw pain ,nimbness off left side of face and tingling ,dead feet like two bricks ,its the head pain loke stabbing quick then goes and burning itchy in same place of the head every time its horrible ,does anyone else get this symtom please my gp said its nerve sensation ? ,but my gp not helpful with me ,hope u all have pain free day as possible hugs xxx

February 28, 2018

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