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Is Anyone Diagnosed With EDS, Hyper Mobility Syndrome Or PoTS, Along With Your Fibromyalgia?

A MyFibroTeam Member asked a question 💭
Parkersburg, WV

I’ve been diagnosed with hyper mobility syndrome, and doctors think I may have Ehlers-Danlos (EDS) and Postural Orthostatic Tachycardia syndrome (PoTS). I want to see if there is a common pattern for those of us with fibromyalgia.

August 28, 2019
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A MyFibroTeam Member

Yep, I've had 3 doctors to-date tell me I have hEds, as I have hypermobility, double-jointed knees, elbows, fingers (swan neck) and neck, soft, stretchy and easily broken/torn skin, lots of muscle tightness and pain, petechiae-like tiny red blood dots, and POTS. I've had those things my whole life, but recently I was diagnosed with Fibro, too, and have a lot of those symptoms, many of which I have also had for years, such as widespread constant pain, tmj, sleep issues, and more recently also nerve-related issues like pain and periodic twitching in my hands and legs (soft tissues). According to my doctor, these 2 disorders overlap in many ways and, often, are thought to be comorbidities, as they occur so frequently together. He said there is no clear-cut line between the two issues in a person that likely has both, so it's just a matter of addressing the symptoms with lifestyle, medications (if needed), alternative therapies, etc.

May 29, 2020
A MyFibroTeam Member

i have POTS too

October 4, 2019
A MyFibroTeam Member

POTS is common with fibro. I have it at times.

September 18, 2019
A MyFibroTeam Member

I found out I have hypermobillity when I was a teenager. Had fibromyalgia 2 years x

August 28, 2019
A MyFibroTeam Member

I’ve been stuck home, not allowed to drive because I’m having POTS symptoms. It’s been over a month now. Getting tested next week.

September 21, 2019

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