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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Diagnosed With EDS, Hyper Mobility Syndrome Or PoTS, Along With Your Fibromyalgia?

A MyFibroTeam Member asked a question 💭
Parkersburg, WV

I’ve been diagnosed with hyper mobility syndrome, and doctors think I may have Ehlers-Danlos (EDS) and Postural Orthostatic Tachycardia syndrome (PoTS). I want to see if there is a common pattern for those of us with fibromyalgia.

August 28, 2019
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A MyFibroTeam Member

Yep, I've had 3 doctors to-date tell me I have hEds, as I have hypermobility, double-jointed knees, elbows, fingers (swan neck) and neck, soft, stretchy and easily broken/torn skin, lots of muscle tightness and pain, petechiae-like tiny red blood dots, and POTS. I've had those things my whole life, but recently I was diagnosed with Fibro, too, and have a lot of those symptoms, many of which I have also had for years, such as widespread constant pain, tmj, sleep issues, and more recently also nerve-related issues like pain and periodic twitching in my hands and legs (soft tissues). According to my doctor, these 2 disorders overlap in many ways and, often, are thought to be comorbidities, as they occur so frequently together. He said there is no clear-cut line between the two issues in a person that likely has both, so it's just a matter of addressing the symptoms with lifestyle, medications (if needed), alternative therapies, etc.

May 29, 2020
A MyFibroTeam Member

i have POTS too

October 4, 2019
A MyFibroTeam Member

POTS is common with fibro. I have it at times.

September 18, 2019
A MyFibroTeam Member

I found out I have hypermobillity when I was a teenager. Had fibromyalgia 2 years x

August 28, 2019
A MyFibroTeam Member

I’ve been stuck home, not allowed to drive because I’m having POTS symptoms. It’s been over a month now. Getting tested next week.

September 21, 2019

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