Hello, I wanted to share with you that I went through somewhat of what you are describing. My doctor in the VA thought I might have shogrens disease when I complained about dry mouth and dry eyes. I was referred to rhuematology and a nice doctor did all the tests. But because I had mentioned that my mother and cousins had autoimmune disease it drew attention to my symptoms more than I probably could have hoped for if I had just continued to complain about a history of baffling aches and pains and a recent worsening of those complaints. My long awaited diagnosis of add inattentive type is more relatable to your frustration with doctors. My kind rhuematologist recommended a book by Cynthia Li, Brave New Medicine. Take care.
Ps, this is my first post, need to build my profile and add pic.
Also forgot to mention, I had no shogrens, no inflammatory disease. But was diagnosed with fibro.

I kept going to drs trying to figure out what on earth is going on with my body. Finally went to the Mayo Clinic in Florida and a rheumatologist there said I had fibro. In the past couple months, I started seeing doctor's at a university and have been diagnosed with autoimmune disease so far. Sad thing is when I talked to a disibility lawyer about it he said the disibility people don't care about fibro and that they think it is just a title people get when drs can't find anything wrong. People need to get informed about fibro! It is very frustrating going through all of this and people look at you like you don't have anything wrong at all....

I can relate I was also told this was my imaginary friend

Lol Priceless! yes, I went to 11 Drs before I had diagnosis 10yrs ago, then Rheumatologist told me I'd had it for 40yrs !
I thought it was normal to have all that pain & I'm a Regist Nurse! As a female you should Always go to young female Dr, of poss. Young because they believe in Fibrom & Chronic fatigue & young because they are up-to-date with all treaments etc. It makes sense as pain in muscles. nerve endings should go to Rheumatologists as that is what they deal with. BUT it is also important to have regular screening by Immunologist as Fibro is often assoc with Auto-immune disorders.
In Medicine history is everything - the more you can tell about symptoms the better. Start at top of head & go right thru' body. Know when symptoms started & how it affects you - things you have tried or have to do to alleviate symptoms.

i rejected my diagnosis initially. i refused to believe i had something that half of the people don't believe in and couldn't be tested for or treated. i finally accepted it the second time i was told. apparently fibro doesn't care if you believe in it or not.