Connect with others who understand.

Sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any Body On Her Also Have Ehlers Danlos Syndrome?

A MyFibroTeam Member asked a question 💭
Kailua Kona, HI
October 12, 2022
•
View reactions
A MyFibroTeam Member

Not that i know of

October 13, 2022
A MyFibroTeam Member

I have the closest variant servere generalised hypermobility spectrum disorder. The only reason I haven't been classes as hEDS is I'm not close with my family and they don't know if any one has any hypermobility in the family. My Rhumetologist says that it's to rare and won't test me even though the EDS guidelines say that I should be. I don't know if that helps. But I am always happy to support you if you would like. 🤗

October 12, 2022

Related content

View All

Who Also Suffers From Joint Hypermobility?

A MyFibroTeam Member asked a question 💭
Caerphilly, UK

Ehlers Danlos Syndrome?

A MyFibroTeam Member asked a question 💭
Lawrence, KS

Trying A Gluten Free Diet Too See If It Helps Looking For Slow Cooker Recipes?

A MyFibroTeam Member asked a question 💭
Ballymena, UK
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in