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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any Body On Her Also Have Ehlers Danlos Syndrome?

A MyFibroTeam Member asked a question 💭
Kailua Kona, HI
October 12, 2022
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A MyFibroTeam Member

Not that i know of

October 13, 2022
A MyFibroTeam Member

I have the closest variant servere generalised hypermobility spectrum disorder. The only reason I haven't been classes as hEDS is I'm not close with my family and they don't know if any one has any hypermobility in the family. My Rhumetologist says that it's to rare and won't test me even though the EDS guidelines say that I should be. I don't know if that helps. But I am always happy to support you if you would like. 🤗

October 12, 2022

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